Hi Thomas. I'm sorry I didn't get your message before now. My son also has a deletion of 46-47. He is 11 now and just stopped walking this past summer. We have been taking him to see Dr Wong at Cincinnati Children's Hospital since 2005. How old was your son when he was diagnosed?
Welcome, I've found a lot of comfort on this site. I've met some incredible people. I hope you can connect with some people to help you through this. If your state has a group, join it. It helped us that we could connect with other families locally. Best of Luck and God Bless.