my name is leeann and my son was diagnosed with dmd december of 2008.
it has been an ajustment,not much help
from any one.And having trouble getting him the therapy he needs.
went to the hospital today to get him started on therapy.Hi every one,my son is now 7 and gets occupational thearpy and speech therapy at home.He has braces and got fitted for custome braces few days ago.I have a sister that helps when she can,but every thing is still up to me to get what he needs done.I love my little angel and we take him to have fun as much much as we can.Hes been to Galveston to see the ocean,we went to Great wolf lodge two weekends ago.doing what we can before he stops walking.Took him to arcade yesterday,he loved it.
About my family:
my family is doing better,we still have a hard time facing the truth,but my son is happy,thats all that matters.Hes 7 now and geting worse fast.Doctor says he is progressing faster than he should.
Name(s) of child(ren)/individual(s) with Duchenne: