adi hazan
  • Male
  • israel
  • Israel
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  • Hadar Sheffer
  • Galia Ben Ishay
  • Nimi Langer
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Profile Information

About me:
moyher to jonathan who has dmd
About my family:
jonathan is 7 years old one of his sisters is 9 and the other is 4 we live in isreal.
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:

Adi hazan's Blog

high hope from isreal

Posted on June 28, 2012 at 1:12am 0 Comments

my 7 year old son, jonathan has duchenne. he is taking far too many vitamin and prednison .  i hope soon there will be some drugs that will end duchenne. keep up the the spirit and wonderfull  gob ppmd are doing. we should learn from ppmd how to push  things in israel, like the awernes of people to duchenne. and raise mony for the reaserch. help us pleas.

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At 10:43am on June 28, 2012, Hadar Sheffer said…
כן! את צודקת אבל אני גדלתי בארצות הברית. אני עובדת ב״פפמד״. אני מעורבת במחקר ש״פפמד״ עושה על השתתפות בניסויים מחקר קליני. אני מאחלת לך ולמשפחתך כל טוב! ואני מתגעגעת לארץ ורוצה לבקר בשוב בקרו!

(sorry my keyboard and software are not good with anything other than English, so there are mistakes I cannot fix!)

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