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Wendy St.Geme 52, Female Sacramento United States: Favorite

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California Families

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Adolescence (age 7-12)

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Funding for equipment

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Website!

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Stretching video

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About me:: I am a working mom with two biological sons and one step-son –all very wonderful boys! I have been married to my husband, Paul, for 10 years. We live in Sacramento, close to my parents, who are our biggest support. They take care of our boys while we are away at work or otherwise. My mom has started making glass jewelry to support DMD. Learn more at www.racinwithnathan.com
I am employed by a fantastic employer in Rancho Cordova called VSP.

About my family:: Nathan is age 10 and was diagnosed with DMD at age 4. We kept telling our pediatrician that something wasn't right. He had a very hard time getting up even a small step. She thought it was just because he broke his femur when he was two. At his 4 yr check-up, I was more aggressive with the fact that something wasn't right! Well, unfortunately, we were right! She mentioned testing him for "muscular dystrophy" but we had no clue what that was. When we got home my husband googled it and, needless to say, we were terrified! Nathan is the coolest kid ever!
We sometimes have to put our foot down and make him stay home with us occasionally because our friends and family constantly want to take him places with them. My friends that have children that are all grown up are taking him ato the movies and dinner, etc. Our youngest son, Josh, is age 5 and has Opitz syndrome. Opitz is a syndrome that affects his facial features by having wide-spaced eyes and a large widow’s peak. . He has some respiratory problems, but seems to be getting better with age. He is a ton of fun and has enough energy for the whole family! My ste-pson, Matthew, is a delight. He is VERY smart amd LOVES baseball - A huge Mets fan! We have Matthew with us once a week and every other weekend. It can get wild around here when all three boys are together!

Name(s) of child(ren)/individual(s) with Duchenne:: Nathan

Age(s) of child(ren)/individual(s) with Duchenne:: 7-12

City:: Sacramento

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Fundraising for individual needs of child with Muscular Dystrophy

Posted on March 13, 2013 at 7:05pm 2 Comments 0 Favorites

Does anyone have advice about fundraising for individual needs i.e. house modification for wheelchair; bathroom, tracking, etc? We want people to be able to write off donation, and us not have to pay taxes on what is raised.Any suggestion on a non-profit organization that might allow us to raise money under their umbrella? Or some other avenue?

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At 6:07pm on August 8, 2010, Julie said…: I think we just say you at mad camp. Aiden and Nathan are in the same cabin.

At 8:18pm on August 7, 2009, Julie said…: Glad he is doing good. Hope he can hold off on the wheel chair. Yes all motor bikes and cars if they want. We just want to raise as much as possible to end duchenne. They can just come for the tri-tip BBQ lunch for $10.00 a person too. Hope to see you and Nathan there.
Julie

At 12:04pm on August 7, 2009, Julie said…: Hi Wendy- yes we are doing a poker run again this year. We plan to do it every year. I will talk to my husband a see if we can make it 8-29. Hope everything is going well and Nathan is doing good. Aiden has been swimming all summer and doing very well. Talk to you soon. Tell your friends who ride motor bikes to come too.

Julie

At 7:56pm on January 27, 2009, Wendy St.Geme said…: Is that for Bay area residents only? Do you know how they determine who goes where?

At 12:08am on December 4, 2008, Kulwant Pannu said…: Hi Wendy. It sure has been a while. I thought I'd stop by and say hello and see how things were going with you. Hope all is well. Happy Holidays!

At 3:05pm on September 15, 2008, Wendy St.Geme said…: I really enjoyed meeting you all as well. You have a beautiful family! Nathan couldn't stop talking about how great it was to meet Aiden! My husband was bumbed that he wasn't there. Maybe we could meet half way for luch/picnic/play date in a park, whatever! Let me know when you have some time on a weekend.

At 12:11am on September 14, 2008, Julie said…: Hey Wendy,
It was great meeting you and your family today. I didn't leave you a message. I wrote one on a different Wendy who does live in San Diego, and her son was diagnosed 2 months ago. Some how I thought you were the same Wendy when I saw the poker run stuff. Anyway I had a great time and would love to stay in touch.

Julie Malecha

At 8:38pm on September 11, 2008, Julie Garcia said…: Hey Wendy,

I hope all is well. It has been hectic and I am going to try to make the fund raiser this weekend but don't know if I can. Nick has been sick and I am tired from work. I may need to go into work for pay close. Lots going on. I posted a msg under Advocacy and responded to another fund raising question. Some thoughts on other ideas....thought you might be interested.

Hope all is well.

Take care,

Julie

At 9:46am on September 9, 2008, Wendy St.Geme said…: No worries, I'll definately keep inviting you! I don't blame you for not doing the telethon! Keep in touch...

At 8:54pm on September 8, 2008, Rebecca Saulsbury said…: Hi Wendy, thanks for the invite. I don't think we can make it but please invite me next time! BTW I never went to work the phones on the Telethon, it kind of freaked me out in the end . . .
Hope all's well,
Rebecca