Sam Ibrahim
  • Male
  • Irving, TX
  • United States
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  • jenn

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Profile Information

Age(s) of child(ren)/individual(s) with Duchenne:
7-12
City:
Agouza, Cairo

Comment Wall (3 comments)

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At 12:07pm on December 8, 2009, jenn said…
austin (and his little brother max) have a deletion of exon 52.
At 7:55am on December 7, 2009, jenn said…
im sorry to hear he is not doing well, how is the health care where he is? i think we are lucky, our two boys are fairly healthy, although austin is not able to walk much any more, he is happy otherwise. we hope to get the boys into an exon skipping trial. i did hear that exon 53 or 51 should help my boys. dr wong is also our doctor, we really like her team
At 4:49pm on December 6, 2009, jenn said…
thanks for the friend request. how is your nephew doing? my oldest son austin will be 11 next weekend
 
 
 

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