This refers to all concerned parents/patients suffering from Duchenne/Becker Muscular Dystrophy.
It is known that currently there is no cure for this disease. However, a lot of research has been happening in recent years in developed countries, and it is expected to be curable in a few more years from now.
For the first time in Asia (India) , we have been able to set up an association of parents and actual sufferes from this disease. We are now in the process of touching base with all concerned, and organizing the first conference for the same in FEB 2009. It is being orgainzed in association with UPPMD, and eminent doctors from around the world would be attending the same, and addressing the issues and the therapies for the same.
We are in the process of touching base with concerned patients/parents, as the case maybe, and informing you about the same. We also seek active participation from you, so as to enable these therapies to be known and understood, so we could fight together to the same.
You are requested to kindly write to us at the following email id, and we shall contact you within 24 hours of the same.
We also request doctors to write back to us, if they could help us in our efforts.