Hello! My name is Margarita, I live in Ukraine, Kirovograd
About my family:
. I have a son, who is ill with Duchenne. He is now 9 years old. Doctors diagnosed the illness at the age of 6.5 . In Ukraine, no one treats such children. Therefore, we are forced to travel to Israel each year to see a neurologist. There we learned how to swim in the pool, ride a horse, do special exercises (such as stretching) every day. For 2 years we have been able to stop the disease. But I would like to communicate with the American parents and doctors who probably know more about new medicines or methods for treating this condition.
I want to participate in different Parents’ Projects for Muscular Dystrophy online. There may already be drugs that can cure my son. Please help us, because we are lonely here with our problem.
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
Comment Wall (11 comments)
You need to be a member of PPMD Community to add comments!
Thanks for your kind words ,in Israel do they hv any treatment for our kids please let me know,,,bcz my son is autistic too ,he has no sense for himself ,,,I am scared with this situation..Please help me .
I have 2 friends that live by me from Ukraine. I am in Alberta, Canada. Her parents are going back home at the end of the month. Please email me firstname.lastname@example.org anytime. I will ask the girls where they are from. They go home once every 4 years.
I am so glad you wrote. This is a very good community, you will find a lot of support here. My son is now 31 years so and is doing ok. Have you ever research France for their research? I have heard they are doing some amazing things I have heard. I'm so sad to hear you have to travel so far to get any help. We are lucky in the US to have so many resources so close by. One of son's nurses is from the Ukraine and has been with us for several years now.. We love her very much. My son is not on any special medicines at this time. He is on a ventilator to help him breath. My personal email is email@example.com. Best wishes for you and your family. Please email at any time and I will write you back. Much love, Carol .