I'm a stay at home Mom wanting to reach out to others who share an interest in ending this terrible disease called Duchenne. I would like support from others who know what it's like& I would like to be there for others who may need a little support as well! We have to stick together, we must be our son's voices! Let's fight to end Duchenne once and for all!!
About my family:
I have a great husband named Mark. We have been married for 14 yrs. I have 2 sons ages 18 & 7, their names are Erik & Brendon. Although we have been devasted by this terrible disease known as Duchenne, it's made us stronger as a family. As bad as it seems I know people are faced with far worse circumstances. I must be thankful for what I have & count mt blessings, even though it's very hard sometimes. If God broughtit to you, He will get you through it.
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
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Lisa, Hannaford suites is very nice and reasonable. They deal with our families alot. Go tot the zoo, compliments of the hosp. Tour the Univ district, that is nice. We went to Coney Island Park, too fun. Make a vacation of it. We were there a few weeks ago.
Hello Lisa nice to meet and make you a friend. It will be nice to have someone to talk to and not live very far away. We are also are trying to get outr son to Cincinnatis Children Hospital. From what we have seen and been told by others it is the place to be for DMD.