My name is Kevin Collier and I am a father of three. I just recently found out that my little guy Ryan has DMD. I am having a real hard time dealing with this news!!!
About my family:
I am married and a father of three children. I have a son Andrew who is a freshman in college on a football scholarship.Then there is Sarah who is starting kindegarden this year. And of course my sweet little Ryan who will be 3 August 30th. We live in St Augustine FL.
Name(s) of child(ren)/individual(s) with Duchenne:
Age(s) of child(ren)/individual(s) with Duchenne:
St Augustine, Florida
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We have a little boy Diego, who is 5 with DMD and he takes Deflazacort (Calcort) - 12 mg daily. We just arrived to Disney in Orlando,Florida and realized that we left his medicine at home!!!!!! I understand he cannot be without Deflazacort more than 24 hours and Diego does not have medicine for tomorrow. By any chance, is your son using Deflazacort? If he is can we buy or borrow any from you?? We are willing to drive and go anywhere to get the medicine and we can replace within 10 days guaranteed. Sorry to bother you wiht this! but are trying to avoid major interruptions for the boys and extendended family due to this...
Thanks for your kind attention to this,
Here is my email and phone number: firstname.lastname@example.org or (513) 765-9416
My name is Brent and my son Braden was diagnosed in Dec 07, he was 3 1/2. The reason we found out he had DMD, was because of the falling, not talking. Now a year later he is in preschool and ahead of where they think he should be entering kindergarten. When was Ryan diagnosed? It is still hard for me 1 year later, hang in there. Brent