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Cindy Tiede
- Female
- Munster, IN
- United States
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Has anyone fought the school board to have sibs & neighbor kids on lift bus w/ur son
Started this discussion. Last reply by Cheri Gunvalson Sep 1, 2011. 4 Replies 0 Favorites
Cindy Tiede's Page
Profile Information
- Name(s) of child(ren)/individual(s) with Duchenne:
- Dominick Servi
- Age(s) of child(ren)/individual(s) with Duchenne:
- 7-12
- City:
- Munster, IN
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Hi Cindy, my son Jacob is 6 and getting ready to turn 7 on June 30. He is in 1st grade. From your picture, you sure do have a good looking family. The picture I have posted is of Jacob from Easter of 2011. I current live in Hobart, do you still reside in Munster. I am glad to have another DMD family so close. I am so sorry that your family has been impacted by this horrible disease and I hope they find a cure or a way to prolong our sons until the cure is found. Jacobs last CPK was 15,000 and he has a deletion of exons 63-67 which makes it hard for exon skipping but I am hopeful. Since I am a realist, right now the horizon shows little light but we can both hope. Thanks for accepting me as a friend and I hope to share stories and knowledge with each other in regards to our beautiful and wonderful boys. Take care and be strong for Dominick and your family.
I hope all is well. I think of you and your family often. I hope to get together some day soon. Hey, don't you come out to Rancho Cordova some times?
Let me know if you are ever in the area and have time.
Take care,
Julie
It's so nice to hear from you. Chris and I missed you and Dick at the conference. Once the kids get back to school lets try to get together for dinner. It's been too long. How are Dominick and the rest of your crew doing? Tim has been ok lately.
Ellen
Just wanted to check in and see how things are going. I hope all is well.
Take care and all the best from California!
Julie
If you are ever in the area please let me know
I'm so glad to find your site!!! Are you going to conference? John and I will be there. We've been out of touch for a while but Liam would love to see Dominick, lets get together this summer. Hope all is well!
Love,
Kristin
I see where you say, Dominick had a great time at the MDA camp...that is great.
Yes, I will be going to Philly with my mother in-law and son, Nick....Nick is 16 years old now.
Julie
I will miss you!! I was hoping to see you again. Some times this is the only way to see the good people we have met along the way. You guys are good people I want to stay in touch. I remember too I believe Dick has a sister in the Sacramento area, Rancho Cordova. If you are ever out this way please do stop by. Give my best to Dick.
We are well. Nick completed the 10th grade and has done very well in school.
Did Dominick enjoy camp?
Do stay in touch. I sent an e-mail to what I thought was your sbcglobal.e-mail account.
Wishing you all the best and looking forward to when we see each other in person again.
Take care,
Julie