'I am not really sure why I joined this page…'I am not really sure why I joined this page, other than to possibly be of assistance to those of you who have children with Duchenne. I did have 2 sons with it, and they lived very active…Blog'I am not really sure why I joined this page…1 FavoriteStruggling with emotions I can not hide
Struggling with emotions I can not hide.
I don't know if I can hold back the tears today.
Well I get to watch your son run and play.
I know I have two special…
BlogStruggling with emotions I can not hide7 FavoritesEvan's story coming to T.VOur families struggle with Duchenne will be aired nationwide on the WGN February 27, this Sunday at 6:00. The series "Inside the Vault" is sponsored by GM and the episode that has a segment on…BlogEvan's story coming to T.V1 FavoriteMarathons...of a different sort.
Two weeks ago, I was invited to present the story of Duchenne muscular dystrophy to Acceleron’s partner, Shire Pharmaceuticals. I walked in the door to find myself surrounded by the word “BRAVE.” …