PPMD Community

Kevin Smith's Comments

At 5:00am on January 22, 2017, Margarita Yashchenko said…: My name is Margarita, I live in Ukraine, Kirovograd. I have a son, who is ill with Duchenne. He is now 9,5 years old. I would like to communicate with the American parents on the skype: alina 1998831. My email: my.science@mail.ru. Please, call me I will be waite. I am sorry, I lern an English only, so I do mistakes.

At 8:19am on September 30, 2010, Chance Showell said…: Heck no! It's a BMW. Do you have a Facebook page? How is the gang? What is you number? Call me dude!

At 4:08pm on September 28, 2010, Chance Showell said…: Kevin... Please give me a call at 407-766-5509.

At 12:59am on May 23, 2010, Leslie Guzman said…: Hi Kevin,

We have a little boy Diego, who is 5 with DMD and he takes Deflazacort (Calcort) - 12 mg daily. We just arrived to Disney in Orlando,Florida and realized that we left his medicine at home!!!!!! I understand he cannot be without Deflazacort more than 24 hours and Diego does not have medicine for tomorrow. By any chance, is your son using Deflazacort? If he is can we buy or borrow any from you?? We are willing to drive and go anywhere to get the medicine and we can replace within 10 days guaranteed. Sorry to bother you wiht this! but are trying to avoid major interruptions for the boys and extendended family due to this...

Thanks for your kind attention to this,

Leslie
Here is my email and phone number: guzman.l@pg.com or (513) 765-9416

At 11:35pm on June 30, 2009, Shawn Jessica and Joshua Arndt said…: Hi,
We met you at last years connect conference. we have a few questions about remodeling/ or building. Jess

At 11:28am on September 3, 2008, Dee said…: HI Kevin....have not heard or seen you around for a while but so glad to see your page/profile up. Sounds like you are keeping yourself pretty busy and active!

Safe hugz to you and your family!

At 9:15am on August 15, 2008, Chance Showell said…: Kevin, So glad that you sent me this link. I keep a picture of your family in the kitchen, I pray daily for healing for Zachary and for you to have the strength to keep fighting and working toward a cure.
God Bless!

At 10:02pm on August 11, 2008, Jennifer Collier said…: Hi Kevin - We're in Florida too. Where's Valrico? We are in St. Augustine. I am trying to get my husband involved in PPMD. Our son Ryan was diagnosed with DMD in May. He will be three at the end of this month.

At 10:53am on August 11, 2008, Kari said…: Awesome Kevin. Thank you so much. This Dad's group is going to be great!

At 11:01pm on August 10, 2008, Rhiannon Traigle said…: Kevin,
Just stopping by your page...I like to see what dads are up to (relay the message to my hubby for encouragement). Looks like you and Zachary have an awesome relationship! LOVE, LOVE, LOVE Batman and Robin!!! Oh, and we have a Reagan too! She'll be 10 in January.

At 11:07am on August 10, 2008, Kari said…: Okay, Kevin, look for the group Dad's only inspired by you and please join. Let me know what you think.

At 10:37am on August 10, 2008, Kari said…: You are so great to offer to talk to him. I think the dad's need to talk to-it seems just a lot of us mom's more so than Dad's connect here. But I love the idea of getting Dad's together. Thank you so much for the idea. Right now, I am going to start a group for Dad's only and we will get you all gathered there. It might help you to build a group of men that way.

At 11:53pm on August 9, 2008, Kari said…: Welcome, Kevin! Good for you! Get those dads involved. My husband never gets on my computer much so he will be one that would be hard to get on here-he works so many hours, he never has enough time. I will show him your page!