Thank you for your reply. I got the paperwork for Dr. Wong and will be forwarding it on to her soon as I get the results of the DNA test back. Hopefully sooner than later. It's been almost 4 weeks already. I know we caught this early especially since the boys are only 2. Your baby is so cute. I love his eyes. Do keep in touch and let me know what Dr. Wong has to say. Best of luck!
So sorry you guys could not make it to the party. I was looking so forward to meeting you and Wyatt. It will just have to be some other time, soon though. Keep in touch. Hope all is well with you guys.
I am so sorry about Wyatt's diagnosis. I know it is so hard to comprehend everything. I am from Abbeville La. We live in Houston now. Wyatt is adorable. My son has been in physical therapy since he was 8 months old. It has really helped him over the years. He is now 5 and was diagnosed 16months ago.
Hi, I have invited Rhiannon and her family to Brogan's birthday party on August 16. I would also like to invited you and yours. I would love to meet all of you. Free food and no present necessary, he has way too much anyway. Let me know if you might want to come. It would be great if you could. Get back to me soon!
I was wondering if you are attending the conference? Michelle and I are going up together and we'd love to meet you there! Also, all of us need to get together before school starts. I figure we could do something in N.O....let me know a good date for you and I'll ask Michelle and Lori too.
THANKS FOR DROPPING ME A QUICK HI. I JUST LOVE THAT PIC OF WYATT AT THE BEACH. HE IS ABSOLUTELY BEAUTIFUL. I'D LIKE TO GET TO KNOW YALL BETTER. YOU CAN DROP ME A LINE BY EMAIL IF YOU'D LIKE : firstname.lastname@example.org
THE LAST THREE YEARS HAVE BEEN VERY CRAZY FOR US, BUT WE'VE COME A LONG WAY. I'LL BE GOING TO CONFERENCE NEXT WEEK AND WE WILL BE MOVING SOON HOPEFULLY BUT I'LL DO MY BEST TO KEEP IN TOUCH.
Saw your post about the baby thing, and just wanted to say that I was thinking the same as Julie and along the lines of Christian. I wasn't there so don't really know, (and just so you know I am queen of taking things the "wrong" way--sometimes I'm "wrong" but sometimes I'm "right.") but it did kind of sound like she was worried about how you would handle having another child who could possibly have the same diagnosis as Wyatt. I know I have thought that same thing about myself. Although I have 4 and had always said 4 was the limit, I find myself wondering if I should have another one for Wyatt's sake but worry so much about the possibilty of having another boy with dmd. (I am not a carrier.) It just seems like an impossible burden to bear but I thought I would die when Wyatt was diagnosed and have found that I am doing much better that I ever dreamed I would be. So, I guess what I am saying, assuming you've had similar thoughts, is that if we have had these thoughts and worries, then being a friend, she might have too and hopefully didn't mean it the way that you obviously took it. But I don't know, I wasn't there, didn't hear her tone of voice and don't know her personality. Just hate to have you be down a friend, when from what I've read, they seem to dwindle in numbers as the years go by. And, it also doesn't mean that you can't feel hurt by her comment, even if it was "innocent" b/c who does *want another child when you might outlive that baby and who doesn't want more babies when that is what you had planned on and now dmd could take that?? It is truly a heart-wrenching situation. (*want--My children are my life and I love them more than anything and would gladly give my life for theirs, as I'm sure you would, which is what makes this decision so painfully difficult. So, I am definitely NOT saying the child is not wanted--just don't want the disease but would/will love them just as insanely as I do my other children!) In the end, like others have said, you have to do what you feel is right for you and your family--it is no one's business but yours. And bet that whatever you decide, you will find support here.
I do know someone who had a baby (girl) after her son's diagnosis, who did something different than other options talked about on here. If you want to know more, let me know. Sorry to write a book.....Take care. Jill
Jessica, Oh my goodness! Wyatt is absolutely beautiful! How do you not bite him everytime you look at him? When was Wyatt diagnosed and what led to the diagnosis? You do not live far from us - we must get together.
We too saw Dr. Africk at Ochsner. My husband's counsin is a nurse in the ped. Neurology dept. and she called us and asked us if we would like an appointment with Dr. Africk. We figured it wouldn't hurt to see another Dr. and get her advise. She was really nice and wonderful, but she was the one that told us that we needed the biopsy....which I have been told is outdated and unnecessary. So far, she is the one I have liked the best. Me and Ray have discussed using her inbetween visits to Cincy, but I'm not sure if we can use Dr. Wong as our official MDA doctor. I want to make sure we still have some connection to MDA incase we do need some assistance from them. I'm just not sure yet beacuse I have so much to still learn.
We thought it was original, too! Let's hope it doesn't become like "Madison." We named our daughter that, after my father and now there are sooooo many Madison's--I think there are like 25 or more just in her 6th gr. middle school class =( Oh well--I still love the names and the kiddos who have them! Are you planning on going to the conference? If so, maybe we will meet there......Jill
Glad to 'met' you! Labadieville is in Assumption Parish. It's right out side of Thibodaux; North Lafourche. It takes me about 45 mins to get to Hahnville, so we should definatley get together sometime! I am so glad to met more parents from LA!
I read your comment in the "newly diagnosed" discussion and saw that you were calling out to others from LA. I believe I saw a group on here for those from there and Mississippi. Just thought I'd let you know so you could connect with them:)
Too funny--I just saw that your son is Wyatt--mine is too! He is 4. There aren't too many Wyatt's out there (for now anyway:). Did you post on the "old" msg. board? I remember seeing another mom that was writing about her son Wyatt. I posted as "Wyattsmom"; maybe you posted under a different name on there and I just don't recognize your "real" name:) Just curious.