Skipping exon 50 will make an in-frame mutation for your son. Good new is that AVI Biopharma works on skipping 50, they received $2.4 M from Charley's Fund to go to clinical trials with that -- Charley also has a deletion of exon 51. They are using the best possible morpholino (PPMO) for skipping 50; this was proven effective on the heart as well as skeletal muscle in mice.
dezi has no side effects from the deflazacort no we did not try the pred first. well the problem with canada is you will have to see a dr in canada. i get deflazacort from mastersmarketing.com you will have to have a perscription from your doctor to get it. i have not had any problems getting the deflazacort i pay debeit online dezi has been on it for 3 years, dezi's is 12 and is still walking i dont know if you have heard of COQ10 but it helps the boys with dmd i saw a difference in dezi when he started on it, it is over the counter you might want to look into that to. im in spokane washington, if there is anything else you want to know or if you just need someone to talk to, or info on meds and resources ill be here to help you in any way i can leah