Walaikum Asslam, I hope you are doing well, sorry , i did not recieved chair yet, I think I will get it in next 15 days, it is on the way now,
how is your son Muhammad Ali,give my love to him, he is like my son Nabeel.
The kids on my site are my grandkids. My only grandson, Jacob DMD and his sister Meredith.
I loved your article and I hope it gereates a lot of talk in the area.
Jacob had an article written about him in Ocean City, MD. We go there on vacation and the Fire Company got wind of his disease and really made a special week for him. Fire truck rides, free tickets to amusement parks, free dining out at great places. A whole tour of Ocean City in the Fire Chiefs car and one of the fireman gave him his fireman's jacket which you can see him wearing in the picture. Our area fire company would do nothing like this for Jacob but they opened their arms for him and the family.
We are hoping to get the members from PA and surrounding States to attend a picnic this summer so we can all meet and the kids can meet others their ages with DMD.
I am going to add you as my friend so we can stay in touch.
Walaikum Assalam, Thanks for remember me,you have add new photograph of Muhammad Ali, he is nice and lovely boy, and very nice pictures,That shows you love your son very much, May ALLAH give happines to your family,
My cousin have shiped chair to me, but it is not yet reach to me, when I will get I will inform you, and send you Nabeel's picture with chair, Please give me an e-mail address of that person, whit whom you got wheel chair,and say thank's behalf of me,
Hi! I just wanted to give you an idea for fundraising. My son's school is having a Hop a thon for Muscular dystrophy. Our gym teacher set it up along with our rep from mda. Maybe this is something you would be interested in. This is the email of our mda rep. firstname.lastname@example.org Hope this helps!
Salamoalaikum, Thank you very much, for wheel chair,you know it is very hard for father , when he see his son on wheel chair, I feel my self that I can't walk, the other thing is there is no goverment facilities for this type of patient,and your goverment is very good for you and your son,in this regard you never feel alone.We always hope with ALLAH, INSHAALLAH it wii be better future for our sons,
You will notice a huge difference when he starts on the meds and really quickly too :-) I meant to put int he last message about our situations being similar. I havent met anyone with the same exon deletion before so its great to "meet" you :-)
Salamoalaikum, do you know any thing about phase one trial, have you met any phase one trial patient? if yes, than have you seen any change after trial,will it be good for our sons,
Last night Mr Shaikh Balol (brother in law) talk to me on telephone, that he will collect chair on friday.he has already cordinate with you yesterday.
Salamoalaikum, Thank you very much for your co-opration and help,I have informed my brother in law he will contac you soon,My son Nabeel is happy to hear about chair,
Do you know anything about ptc 124 next trial, are you intrested in trial?
Hi! Thank you for your note. I was feeling guilty that I transfer the BAD gene to Gregory. But not anymore....I actually feel that I am blessed to learn from many people who I might not be able to meet if my son doesn't have DMD.
Hello. My son Alec has difficulties in running, jumping, stairs, and going up and down curbs. He also has difficulties in speech. He is getting help through the school district now. He seems tired a lot of the time. He does not sleep well. He is especially tired at the end of the day. He seems to be doing better now that he is taking deflazacort. His dr has also put him on iron drops, this has decreased the number of times he wakes up in the middle of the night with leg cramps. He also is walking on his tip toes some of the time.
How is your son doing?
Salamoalaikum, Mashallah you are now with you PC, I will pass your Cell No to Him,
My brother in law lives in T Neck N.J I will give you correct address on monday his name is Mr Shaikh his Cell no is 2016923719, when you call him give him my refrence,give my love to your son Muhammad Ali.
Salamoaalikum, I already touch with Allah with deep of soul, my wife and his grand mother pray for him after each namaz, I also in touch with Doctor,you can also feel what I am thinking about my son, Because you are also like me.
Please give me your cell No. are you in New Jercy now.My brother in law in New jercy now, I will give him your cell No he will call you and settle for electronic wheel chair. Inshallah
Salam and Eid Mubarik to all of your family members from me and all my family members,and very very thanks for arrange for me a electric wheel cahir I will give you tomarroewmy sister in laws address who lives in New Jercy