Eileen DeLong's Comments

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At 3:27pm on September 12, 2008, Kelly Bruhl said…
Thank you for the information Eileen! To hear about people with the same deletion living so long makes me feel sooooo hopeful. Cade is doing better on deflazacort. -Kelly
At 1:56pm on September 12, 2008, Dina said…
Hi! Eileen I have 2 boys one with dmd and one without. I don't know if I am a carrier because I haven't been tested. I know I should in case my daughter is a carrier too. Looks like our boys are the same age. This is a great website and you will learn a lot from the other parents.
At 1:08pm on September 12, 2008, Kari said…
Welcome Eileen to PPMD Community. My son Jared was born 11/14/2000 and has Becker MD. We have no history of it. PPMD Community is a wonderful place.

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