Karen Barnett's Comments

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At 12:37pm on June 14, 2008, Rosanna Ouellette said…
Hi Karen, Loved your pictures. How are things going? We have been through a lot this year with Jake as far as school, behavior and anxiety but he is coming around. Will you be at the conference this year? We plan on attending. Rosy
At 7:23pm on June 12, 2008, Polly Sundeen said…
Loved the video of Daniel swimming - I'll show Cole when I get home tonight. Hope you are hanging in there - I miss talking to you. The best thing about this site is all the pictures and videos of all our boys...now if I would just take the pictures and videos......I'd be a step closer to sharing them. LOL
Polly
At 10:48pm on June 10, 2008, DeAnne Friar said…
I saw your video of Daniel running. What a great idea. He and my Kevin are very much the same right now.
At 7:45pm on June 4, 2008, Jenny Garofalo said…
Hi Karen,
wow! I cannot believe all this activity now on the site. message board still not user friendly but the rest is fun. did you have class tonight?
At 6:12pm on June 4, 2008, Jennifer Shumsky said…
Hey Karen,
Where are you taking your nursing classes? I totally respect that you are managing full time motherhood to 4 kids, 1 with DMD and taking nursing classes. I can't imagine doing nursing school again :) I can offer to help you with anything with school, but I'd be afraid that after graduating 13 years ago I may not be helpful...but I'm willing to do what I can, I still keep my MI license active.
At 5:13pm on June 4, 2008, Susana Arroyo said…
Thanks for accepting the request!
At 12:06am on June 4, 2008, Jenny Garofalo said…
It is very frustrating trying to see all the issues. I am afraid that someone who really needs that shoulder to lean on is going to get lost or feel as if no one is responding
At 11:45pm on June 3, 2008, Jenny Garofalo said…
hey,
so how do we find all the topics like on the message boards??
At 11:24pm on June 3, 2008, cheryl cliff said…
Karen,
I loved the Daniel Running video! He did a fantastic job of the most difficult thing for my son Alexander. Daniel runs quite well!!
cmcliff
At 9:14pm on May 12, 2008, Jenny Garofalo said…
Hi Karen,
I responded to you on the message board but then read another area you wrote in and thought I would email here. It sounds like our 2 Dannys have so much in common. We just got back from Dr Wong and Dr Cripe and Kathy NP want Danny to come off steroids but Dr wong said absolutley not. She said we should start a mood stabilizer. Danny had 4 tantrums increasing in intensity throughout the day of clinic ending with him wiping 3 games off the counter and across room. We are working with a behavior therapist and have decided to really try intensive behav modification. I know exactly what you mean when you say you wish the mental aspect did not exist. This is the part that I find most exhausting about this whole disease. Feel free to call sometime we can compare techniques. Jenny G
At 12:17pm on May 6, 2008, DeAnne Friar said…
OK I just added you to my friends list. Not sure what that means. I guess I'll be talking to you. I love your pictures!!
At 12:45pm on May 5, 2008, Kim Eichelberger said…
Thanks Karen, I've managed to get a picture on:) !
At 10:22pm on May 4, 2008, Jennifer Shumsky said…
Hi Karen,
Love the new scooter! We are looking at getting one, but currently the score is Mom and Dad say Yes! Xavier says NO, so why bother if the kid doesn't want one. So we are going to borrow one since Xavier actually doesn't understand what we are talking about. I wanted to also let you know we have been using the Sandoz deflazacort for a while and haven't noticed a difference, but we have never seen any side effects with steroids, so I'm not sure we would. I know in the US the policy with generic meds they could be up to a 30% difference in the dosage of the med and still be considered ok, so not sure if that still stands true, but that is why with certain medications it is imperitive you stick with Brand name. It may be in your case you need to make sure you always stay with the same brand of deflazacort.
Anyways, enjoy the new scooter and the freedoms it brings!
Jennifer
At 10:07am on May 4, 2008, Kim Eichelberger said…
Hi Karen, thanks for the invite! This site looks it'll be great. I love all the pictures of Daniel! I will try to get some pics on tonight, as long I can figure out how:)
At 2:25am on May 4, 2008, Jill Keenan said…
Hi Karen--I accidentally sent you a msg instead of a comment! LOL--I guess u can tell I am super savvy at stuff like this:)
At 11:31pm on May 3, 2008, Mary Sahagun said…
Hi Karen,

Really enjoyed all the pictures. The profile picture is my favorite. What a sweet face your Daniel has.

Take care,
Mary
At 10:21pm on May 3, 2008, Amy Fanning said…
Thank you. All of this is so new and overwhelming.
At 6:16pm on May 3, 2008, Lisa Jones said…
The credit for the photos and the videos go to Bradley's uncle. He make a DVD every Christmas and also gives me a disc with the pictures and videos.
At 1:59pm on May 3, 2008, Polly Sundeen said…
Hey Karen!
Love all the pictures and videos of Daniel. Cole loves being able to see his friends on here. He wants to watch the videos over and over again. It's time to start camping again - so I'll start taking pictures again. :-)
Give Daniel hugs from us!
Polly
At 9:45am on May 3, 2008, Lisa Jones said…
Hi Karen. Thank you for sharing with me. This is so wonderful. I love your slide shows.

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