Karen Barnett's Comments

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At 5:02pm on March 15, 2009, djamel fathi said…
Karen,still it's not working,I tryed to save it but NO succses.
At 3:30pm on March 15, 2009, djamel fathi said…
Hi the file been downloading for 30mns and still not done???
I don't know what's wrong.
At 6:11am on March 15, 2009, djamel fathi said…
My E-mail is:fathidjameleddine@yahoo.fr
Thankyou.
At 10:51pm on March 14, 2009, djamel fathi said…
Hi,I'll fight it,please can you send me an idea how I'll do an appeal to the insurance company.you know I don't have much time,my appointment is for march31st till april 2nd.
You're a very nice family,hope the BEST for you & everybody.
At 6:06pm on March 9, 2009, Rosanna Ouellette said…
Hi Karen, How have you been?
At 4:44pm on March 1, 2009, Susan Hemphill said…
Hi Karen,

It's Sue from VA (my son is Bill, 19 yr old with 51 deletion). Would you please email me at smhemphill@comcast.net to let me know how Daniel and your daughters are doing? I also wanted to ask you some other questions. Thanks and hop all is well with you guys!

Sue
At 8:57pm on February 24, 2009, Julie Hathaway said…
Yes, I am on duchenne connect. Are you on www.dystrophin.org? I just registered there this week. It's out of Utah....Dr. Kevin Flanigan. Thanks so much. I hope we're able to meet one day.
At 9:50am on February 24, 2009, Julie Hathaway said…
Karen,
Thank you so much for the information. Where can I be sure that I stay informed on everything. I'm connected with several sites, but want to be sure. I worry that I'm miss an opportunity for Brandon to be a participant in a study/trial. Faith is what keeps our family going. Check out Jeremiah 33:3 and Habakkuk 1:5. These verses will make your day! I'm so glad to have met you via email. Hope your day is awesome!
Julie
At 11:11pm on February 23, 2009, Julie Hathaway said…
Karen,

My son, Brandon, also has a a deletion of 51. He is 6 years old and was recently diagnosed by Dr. Brenda Wong with DMD. Is he eligible for the AVI study that is currently recruiting participants? If not, do you know what is coming down the pipeline? Pat Furlong stated in an email to me that sounded so hopeful for our boys. Praise the Lord. I'm looking forward to hearing from you. Thank you.
At 1:07am on February 23, 2009, Cheryl Markey said…
I just got done viewing your pics.....sometimes I just sit here and view other families pics......just seeing all the boys with smiles on their faces....they all are special angels, no wonder they are loved so much by all of us!
Thanks for sharing the pics on your page with us here on PPMD!

Cheryl
At 9:45pm on February 21, 2009, Stephanie Hurwitz said…
Karen ,
Thanks for the Mi invite. Its amazing how many kids are out there with Duchenne. There are 4 other kids in our school district alone.
Stephanie
At 4:35am on February 11, 2009, Julie Garcia said…
Hey there!
At 8:53pm on December 25, 2008, Julie Garcia said…
Happy safe, healthy holidays to all!

Julie
At 12:22am on December 13, 2008, Keith & Jill VE said…
Hi Karen, Yes, our 4 year old son was recently diagnosed. Thanks for the link to the Michigan group.
At 12:45am on December 4, 2008, Julie Garcia said…
Hey there!
At 5:32pm on November 24, 2008, Julie said…
Hi Karen, My son is 10 and also has a DMD diagnosis. We found out 4 years ago. He walks but has trouble with stairs and getting up from the floor.

Julie
At 8:39am on November 10, 2008, Julie Garcia said…
Travel safely!
At 10:52am on November 5, 2008, Benjamin Dellay said…
Hi Karen:
I talked with the OT at Jason school today and she gave me a copy of here report and she is recommending service and said she thinks the PT is going to as well. I will let you know how it goes after the meeting on Thursday morning. Ben
At 8:23pm on November 3, 2008, Benjamin Dellay said…
Hey Karen, Sorry I have not been on in a while. I was wondering if you could shoot me an email at my home email. I lost all my PPMD contacts when I got a new computer. I have an IEP this Thursday for my son Jason and was hoping to be able to talk to you and get some feedback if you have the time. My home email is dellay@sbcglobal.net or you can reach me during the day at dellabg@whirlpool.com. Hope you get this in time.
Hope you and your family are doing good.
Ben
At 11:59pm on October 22, 2008, Julie Garcia said…
Hi Karen, I see you are online and I am able to use the computer for a few minutes....my husband will be back for it shortly.....hope all is well

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