Hi,I'll fight it,please can you send me an idea how I'll do an appeal to the insurance company.you know I don't have much time,my appointment is for march31st till april 2nd.
You're a very nice family,hope the BEST for you & everybody.
It's Sue from VA (my son is Bill, 19 yr old with 51 deletion). Would you please email me at firstname.lastname@example.org to let me know how Daniel and your daughters are doing? I also wanted to ask you some other questions. Thanks and hop all is well with you guys!
Thank you so much for the information. Where can I be sure that I stay informed on everything. I'm connected with several sites, but want to be sure. I worry that I'm miss an opportunity for Brandon to be a participant in a study/trial. Faith is what keeps our family going. Check out Jeremiah 33:3 and Habakkuk 1:5. These verses will make your day! I'm so glad to have met you via email. Hope your day is awesome!
My son, Brandon, also has a a deletion of 51. He is 6 years old and was recently diagnosed by Dr. Brenda Wong with DMD. Is he eligible for the AVI study that is currently recruiting participants? If not, do you know what is coming down the pipeline? Pat Furlong stated in an email to me that sounded so hopeful for our boys. Praise the Lord. I'm looking forward to hearing from you. Thank you.
I just got done viewing your pics.....sometimes I just sit here and view other families pics......just seeing all the boys with smiles on their faces....they all are special angels, no wonder they are loved so much by all of us!
Thanks for sharing the pics on your page with us here on PPMD!
I talked with the OT at Jason school today and she gave me a copy of here report and she is recommending service and said she thinks the PT is going to as well. I will let you know how it goes after the meeting on Thursday morning. Ben
Hey Karen, Sorry I have not been on in a while. I was wondering if you could shoot me an email at my home email. I lost all my PPMD contacts when I got a new computer. I have an IEP this Thursday for my son Jason and was hoping to be able to talk to you and get some feedback if you have the time. My home email is email@example.com or you can reach me during the day at firstname.lastname@example.org. Hope you get this in time.
Hope you and your family are doing good.