Dusty looks hunky - must be an aussie! ;-) Your mum home or still stateside? Want to invite her personally to the launch in Sydney on Oct 24? Doug, Geoff & I are going down so would like to meet a few online pals at last...ALL the faithful will come in February though - they better, I got the fed govt grant again to help disadvantaged parents.
I was just reading about the PTC124 trial and saw your son Dusty did the 28 day trial. My son isn't eligible for the trial as he is only 4 years old, but we hold out hope that it will work and he end up on PTC124. A quick question, did they notice any significant changes in your son during the 28 days? Is he on the extension study about to start?
No he doesn't do either of those. We actually told him he could do a myspace or something if he wanted, he just wasn't interested. He mostly just plays his x-box (Lego StarWars, Lego Indiana Jones, Transformers, etc) and waits for the next Star Gate Atlantis episode to download on his itunes. Since he does Independent Study for school he is even more isolated. He is a great kid (at least I think so) with a great sense of humor he is just struggling right now.
That would be nice, I'm not sure how to pull if off though. Jon has really isolated himself and it is hard to get him to do anything. He is also going through some more serial casting beginning next week. It is hard to get him out of the house at all, he seems pretty content just hanging out playing x-box and watching movies. It is really frustrating.
Thanks for the sponsorship! I hope you approve of how it is going to be used. I invited the golf team at Robert's high school to use the foursome. Hopefully this will bring in more donations from new supporters. http://www.dawsonschool.org
I hope more Aussies are signing up, I spammed our mailing list. ;-) Sure i know of your mum and I recall your own support for Oz science in Dusty's name. Pat has done some advocacy for us in NSW and sold some trifecta tickets too - in my experience a great sacrifice especially if one must venture into the bowels of pubs to flog them to drunks! The things we do? Nite.