Salamoualaicoum,I'm glad your son is happy,and I HOPE everything will work out good about their health INCHAALAH ,
They're in the second phase of the trail now,my son doesn't qualify for this trail,at least that what they told me the first time I have appointment with new neurologist in jan 09 I'm hoping that I'll get some answers about my son's case.
Sorry, I do not know a lot about bmd. I know that I am a carry for DMD and that if I have a girl should would be a carrier and if I had another boy there would be 50/50 shot if he would be affected or not.
Hi- My younger son, Patrick is five, and he has DMD. He was two when we found out. Our other son, Kyle is six and does not have DMD. Patrick is doing well. He takes Prednisone and is going to have his legs casted weekly for six weeks and then physical therapy after the new year.
Salamou alaicoum,today I did talk to your cousin,it was a pleasure for me ,like I did explain to him I'm just waiting for the other guy from I'm getting the chair ,soonest he get his chair I will get in touch with your cousin right a way,
I hope everything is fine with you & family.
Fer-a-sol is the name of the iron drops. They took a blood sample and discovered he was very low in iron.
My other son Joe does not have dmd. I am not sure if I am in fact a carrier of this disease. I have not been tested and there is no other dmd in the family. It could be that Alec's disease was a spontanious mutation. If I am a carrier, Joe would have dodged the bullet so to speak. He would have had a 50% chance of having this terrible disease passed on to him.
I was talking to an IMAM, he told me that kiam el lail,douaa from you your wife & his grand mom are the best way to save your son and your self of course keep in touch with doctors.may ELLAH give him and others the health INCHAALLAH.
Why the doc said U can't have more babys?did your wife a carrier?
If it's the case then there will be risk for the boy to be sick but not 100%,I explain to you how that work befor.Does your son have :DMD Or BMD.What was the result ? does he have a deletion of any exon?
Salamoualaicoum,I don't know any body who participate the trails for stop codon,using PTC124,you can add a comment in your page about that you will get answers.
my E-mail is :firstname.lastname@example.org
Good news,INCHAALAH there is a guy who have a good condition electric wheel chair just waiting for a bigger one for him.it's free chair just U have to pay S&H[usps,feedex,,,] what ever cheapest one to get it to you INCHAALAH.I'm up top don't worry.salamalaicoum.
Salam,eid mobarak for U & all family.which concern having a nother baby:is the wife porter of the gene ?if yes that mean will be fort chances to have a boy with desease if it's a girl she can be a porter or free from it.mother have:xX father have:xy.
boy can be affected if:Xy,or not:xy [X:AFFECTED CHROMOSOME] .
Now there is a small% when the mother isn't affected,the case of my wife,when the mutation start from my son,but no body knows HOW,
We do our best for them,wepray to ALLAH every day to help every body INCHAALAH.
Salamalaicoum,I'm sorry for your son,you sure it's BECKER? because in becker kids do have some Dystrophen in the muscles
wich can make them walk for much longer than kids with Duchenne?.
Prayer is the key INCHAALAH for our kids.