Nabeel Ahmed's Comments

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At 6:12am on December 31, 2008, djamel fathi said…
Salamoualaicoum,I'm glad your son is happy,and I HOPE everything will work out good about their health INCHAALAH ,
They're in the second phase of the trail now,my son doesn't qualify for this trail,at least that what they told me the first time I have appointment with new neurologist in jan 09 I'm hoping that I'll get some answers about my son's case.
At 8:39pm on December 30, 2008, Jessica Florkowski said…
Sorry, I do not know a lot about bmd. I know that I am a carry for DMD and that if I have a girl should would be a carrier and if I had another boy there would be 50/50 shot if he would be affected or not.
At 11:03am on December 30, 2008, djamel fathi said…
Salamoualaicoum,good news the person just get his new wheel chair today,so his older one[wich is in good condition] it's yours congratulation,I'll contact your cousin to come & see the chair.
At 4:30pm on December 21, 2008, djamel fathi said…
Salamalaicoum Mr NABEEL,I didn't forget we still waiting for the wheel chair like I promessed you soonest I hear any news I'll get in touch with you,I hope your son & everybody doing good INCHAALAH.
At 6:00pm on December 19, 2008, Jessica Florkowski said…
Hi- My younger son, Patrick is five, and he has DMD. He was two when we found out. Our other son, Kyle is six and does not have DMD. Patrick is doing well. He takes Prednisone and is going to have his legs casted weekly for six weeks and then physical therapy after the new year.
At 5:31pm on December 16, 2008, djamel fathi said…
Salamou alaicoum,today I did talk to your cousin,it was a pleasure for me ,like I did explain to him I'm just waiting for the other guy from I'm getting the chair ,soonest he get his chair I will get in touch with your cousin right a way,
I hope everything is fine with you & family.
At 12:11pm on December 15, 2008, Amy Wickert said…
Fer-a-sol is the name of the iron drops. They took a blood sample and discovered he was very low in iron.
My other son Joe does not have dmd. I am not sure if I am in fact a carrier of this disease. I have not been tested and there is no other dmd in the family. It could be that Alec's disease was a spontanious mutation. If I am a carrier, Joe would have dodged the bullet so to speak. He would have had a 50% chance of having this terrible disease passed on to him.
At 11:57am on December 15, 2008, Julie Garcia said…
Hello,

Nick is on 39 mg of deflazacort, 200 mg co-q10, protandim, calcium, vitamin E, and enalapril

I have no climbing device for Nick. Nick can not walk, only a step or so to transfer from his chair to the car.

Let me know if you need anything else.

Take care,

Julie
At 1:43pm on December 13, 2008, djamel fathi said…
Salam,I just called your brother in law,he wasn't home but I did talk to a woman ,I left a message with her to your brother in law,I' m waiting for his call,
At 10:55am on December 13, 2008, djamel fathi said…
Salamoualaicoum,ELHAMDOULILLAH for everything,my phone#6098460641,I'm in new jersey also ;north wildwood,nj
Where in new jersey.
At 9:12pm on December 12, 2008, djamel fathi said…
I was talking to an IMAM, he told me that kiam el lail,douaa from you your wife & his grand mom are the best way to save your son and your self of course keep in touch with doctors.may ELLAH give him and others the health INCHAALLAH.
At 6:41am on December 12, 2008, djamel fathi said…
Why the doc said U can't have more babys?did your wife a carrier?
If it's the case then there will be risk for the boy to be sick but not 100%,I explain to you how that work befor.Does your son have :DMD Or BMD.What was the result ? does he have a deletion of any exon?
At 6:33am on December 12, 2008, djamel fathi said…
Salamoualaicoum,I don't know any body who participate the trails for stop codon,using PTC124,you can add a comment in your page about that you will get answers.
my E-mail is :fathidjameleddine@yahoo.fr
At 2:13pm on December 10, 2008, djamel fathi said…
Good news,INCHAALAH there is a guy who have a good condition electric wheel chair just waiting for a bigger one for him.it's free chair just U have to pay S&H[usps,feedex,,,] what ever cheapest one to get it to you INCHAALAH.I'm up top don't worry.salamalaicoum.
At 6:38am on December 9, 2008, djamel fathi said…
Salam,eid mobarak for U & all family.which concern having a nother baby:is the wife porter of the gene ?if yes that mean will be fort chances to have a boy with desease if it's a girl she can be a porter or free from it.mother have:xX father have:xy.
boy can be affected if:Xy,or not:xy [X:AFFECTED CHROMOSOME] .
Now there is a small% when the mother isn't affected,the case of my wife,when the mutation start from my son,but no body knows HOW,
We do our best for them,wepray to ALLAH every day to help every body INCHAALAH.
At 7:02am on December 6, 2008, djamel fathi said…
Salam,ok,brother from my side I'll do some contacts to try to get you an electric chair inchaalah soonest possible ;make DOUAA INCHAALAH,give my best salutation to your son may GOD help us INCHAALAH.
At 5:52am on December 5, 2008, djamel fathi said…
Salamalaicoum,I'm sorry for your son,you sure it's BECKER? because in becker kids do have some Dystrophen in the muscles
wich can make them walk for much longer than kids with Duchenne?.
Prayer is the key INCHAALAH for our kids.
At 5:18am on December 4, 2008, djamel fathi said…
I mean do you have a dilition exon or stop codon?
At 5:15am on December 4, 2008, djamel fathi said…
Hello,about ptc124,is vey good news they're going to start 2A extension study.go to discussion forum you will read more about it.what kind of MD you got?
At 6:08am on December 3, 2008, djamel fathi said…
Hi,there're so many things going on,here in the US we've an active community,I just find out about my son desease few months ago,all U need to know is in the internet.
I hope U're doing good,salam.

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