Tracy's Comments

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At 9:24pm on November 10, 2009, Janine said…
Hey, how about that nice leap that Ward made to score the touchdown in the final minutes!
At 9:39am on May 11, 2009, Jacobs Mommom said…
Hi Tracy:

I see you live in Cooperstown (though I'm not sure which one). Would you be able to join the PA familes in this area to help with the fundraiser in October? We will need people to man the ticket table and the games.

If so please email me at so I can put you on the mailing list.
At 7:37am on January 31, 2009, Janine said…
Can you believe I am working Sunday during the Super Bowl. I tried to switch my schedule around yesterday but couldn't.

At 10:09am on January 27, 2009, Dina said…
I just wanted to let you know that I still am not sure about seeing Dr. Wong. I recently spoke to a 31 yr old with Duchenne. I asked him what he thought about going to Cincinatti and did he ever see Dr. Wong. He said he did hear of her but sees Dr. Finkel at CHOP in phila. He still gets great care! I was very excited that he is doing well. So I am still thinking about it. The group I see at DuPont seem to know what is going on. When we first found out our son had this disease they quickly put him on steroids and he had all the tests that everyone seems to say Dr. Wong does. I feel so confused! Well I just wanted to let you know what I was feeling. I don't know if this really helps you?
At 8:39am on January 21, 2009, Dina said…
I am seriously thinking about getting an appt with Dr. Wong. It would take me 101/2 hrs to get there. It looks like you can stay at the Ronald McDonald house too. Let me know what you think?
At 1:28pm on January 19, 2009, Kari said…
Thank you for your prayers. You are so sweet and kind and I appreciate your advice on the IEP.
At 11:47pm on January 18, 2009, Janine said…
Yes, we are fans. Just got done watching the game. We live in Columbus Ohio but I grew up in Pgh, rest of my family still there. Good game huh. Can't wait till the Super Bowl, yeee haaa.

At 11:38am on January 18, 2009, Janine said…
Your family going to be watching the game tonight?

At 10:38am on January 18, 2009, Kari said…
Hi Tracy,

Thanks for checking. Yes, the responses did help very much. I just found out from Jared this morning that Josh from the School District came and did his physical assessment this past week. So, the next step will be the IEP meeting. From my understanding, goals should be flexibility and keeping Jared walking as long as possible. I am curious to see what Josh will say. By the way, I don't know if I told you this before, but what a lovely family you have.
At 9:06pm on January 11, 2009, Beth Kilgore said…
Hi, Tracy,
Don't know if you remember me, but we had e-mailed for awhile a few years ago. I also had a brother with Duchenne. I was looking at the posts in the Carriers group, and I thought of you and wondered if you were on PPMD Community. I remembered your first name and that you lived in PA, so I did a search on the site, and there you were! I'm glad to know that you found this site--it has been such a blessing to me. I hope it is to you, too!
Beth from CA
At 3:51pm on January 8, 2009, Danielle said…
Thanks for your lovely message. You have a wonderful family. Lovely pictures. I wish you lots of happiness.
At 8:00pm on January 7, 2009, Darcy Tumminello said…
Hi Tracy,
You have a beautiful family and your son looks great!
Just wondering which Cooperstown your from? I believe there are four..what county are you in?
Christian's Mom

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