With Congress back to work it is time we re-engage with members on moving the MD-CARE Act through the legislative process.
Where are we with the current bill?
Thanks to your efforts, we have collected 77 cosponsors in the House and 17 in the Senate.
The bill still needs to be taken up by committees in both Houses, normally beginning with the Senate HELP committee (Health Education Labor and Pensions) followed by the House E&C committee (Energy and Commerce).
Why is it so important to pass this legislation?
This MD-CARE Act will continue the momentum started in 2001. It will help to ensure a full Duchenne drug development pipeline by supporting the work and progress we have made to date. We need therapies for all those diagnosed with Duchenne and while we are seeing progress with some potential therapies, there is still much work to be done. The MD- CARE Act keeps Duchenne on the radar at the NIH, brings more researchers into the Duchenne space, and moves potential therapies from bench to bedside.
What can YOU do to help move the legislation?
We need your help! The best thing you as a parent, family member, or friend can do is to call your member AND sign THE LETTER to Congress asking them to cosponsor the bill if they haven’t done so already. We have some specific targeted committee members we need to have on board as cosponsors in order to get this bill moving. That is why we are asking you to enlist your friends and family to help!
Do you know someone in one of the following states or districts? Please send them our sign up for the letter.Back in February of this year we had over 3600 people sign up for our packet drop off where families hand delivered a copy of THE LETTER requesting Congress cosponsor the MD-CARE Act. Please tell your friends and family to add their names to our growing list of constituents that demand action on the MD-CARE Act today!
This is one of the easiest, yet most effective ways you can help our fight to end Duchenne.