The following is a poem that my husband, Trevor Colby, wrote. It's dedicated to our son Jacob Colby (5) diagnosed with Duchenne Muscular Dystrophy. Please read and share with others.
Mommy Daddy walk with me
Let's go slow so I can see,
all that this life has given me.
Let's take our time and enjoy the day,
laugh and joke along the way.
Hold my hand so I don't fall,
make me stand up big and tall.
Down the road there will come a day,
where I won't be able to walk this way.
Running, jumping, tying my shoe,
these are all the things I won't be able to do.
My body is special for this I know,
this walk will get harder as we go.
Life may be short but we can make it feel longer,
by loving life and pushing to get stronger.
I'm not scared, I have no fear,
I always know that you'll be here.
To pick me up if I fall down,
to make me laugh if I start to frown.
If only this walk could last forever,
you can't beat this time we have spent together.
This walk may be shorter than it should be,
but look at all the fun you had with me.
We laughed and joked the entire day,
You held my hand along the way.
I kept my head up and stood up tall,
I did not trip or even fall.
Mommy Daddy I hope you can see,
Just how much this walk meant to me.