The following is a poem that my husband, Trevor Colby, wrote. It's dedicated to our son Jacob Colby (5) diagnosed with Duchenne Muscular Dystrophy. Please read and share with others.

Mommy Daddy walk with me

Let's go slow so I can see,

all that this life has given me.

Let's take our time and enjoy the day,

laugh and joke along the way.

Hold my hand so I don't fall,

make me stand up big and tall.

Down the road there will come a day,

where I won't be able to walk this way.

Running, jumping, tying my shoe,

these are all the things I won't be able to do.

My body is special for this I know,

this walk will get harder as we go.

Life may be short but we can make it feel longer,

by loving life and pushing to get stronger.

I'm not scared, I have no fear,

I always know that you'll be here.

To pick me up if I fall down,

to make me laugh if I start to frown.

If only this walk could last forever,

you can't beat this time we have spent together.

This walk may be shorter than it should be,

but look at all the fun you had with me.

We laughed and joked the entire day,

You held my hand along the way.

I kept my head up and stood up tall,

I did not trip or even fall.

Mommy Daddy I hope you can see,

Just how much this walk meant to me.

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Comment by Penny Hauer on August 6, 2010 at 3:35pm
that is beautiful with my son its the hand holding and meeting in Heaven at the pearly gates.thank you for your beautiful words Penny
Comment by Veronica E. on March 4, 2010 at 9:52am
I'm sobbing as I type this. So beautiful. Thank you for sharing.
Comment by Ann Avery on March 3, 2010 at 10:35pm
Thank you for sharing Trevor's poem. Who could read it and not cry? Tears are therapeutic and should not be held in when dealing with serious issues. I only wish every boy diagnosed with DMD had two loving parents to guide the way. Bless you and your precious boy.
Comment by Donna on March 3, 2010 at 8:42pm
my throat is closing and tears are falling. what a beautiful poem. while it added more tears to an already devasting day (ie. ataluren results) - it truly is beautiful. I will definitely share with friends.. Thank YOU for sharing....
Comment by Melinda Colby on March 3, 2010 at 7:43pm
Okay, I reposted it! Cross your fingers, I hoped it worked!
Comment by Ann Avery on March 3, 2010 at 3:54pm
Cannot find the poem, but am so impressed a Dad would write one. My son is 29 with DMD and we are living in Bellevue so he can work at Microsoft if that helps give you HOPE.
Comment by Donna on March 3, 2010 at 1:53pm
Did i miss a link because i don't see the poem and would love to read it....

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