Senate and House Continue to Send Message Against CDC Consolidation

Thank you to everyone who reached out to their Senate and House members about stopping consolidation of vital Duchenne programs at the CDC! Members of both the House (PDF) and the Senate (PDF) sent a strong message to Dr. Friedan on why they believe Congress spoke clearly in the FY 2012 Consolidated Appropriations Bill. They stress that it is incumbent upon the CDC to sufficiently demonstrate to the disability community, partner organizations, and members of Congress how consolidating the programs of NCBDDD will allow CDC to continue to meet the needs and provide essential elements of support for individuals with disabilities before moving forward with the plan.


Thank you to all our Advocates for reaching out to your members! Your continued work is having a tremendous impact.

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Ryan Fischer, Director of Outreach & Advocacy
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Comment by Stephanie Matthes on September 26, 2012 at 1:53pm

Hi Gail- Sorry for the delay, Ryan is on vacation this week :) But yes, the CDC consolidation was stopped and Dr. Friedan (Director of the CDC) has agreed that consolidation would negatively impact children with rare conditions and/or disabilities.

Comment by Gail D. McVicker on September 23, 2012 at 11:20pm

I probably should know this, Ryan, but was the consolidation stopped?

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