Registration for PPMD's 2016 Connect Conference is Now Open

Parent Project Muscular Dystrophy's Annual Connect Conference is a unique convergence of industry partners, scientific leaders, medical providers, people living with Duchenne, and their families. This exceptional meeting has grown to be recognized worldwide as the foremost Duchenne muscular dystrophy meeting. But more than that, it is a way for families affected by Duchenne to connect with each other. To build support networks. To realize no one is on their own in the fight to end Duchenne.

This year, 2016, marks our 22nd Connect Conference. With the Duchenne landscape changing in so many ways just in the last six months alone, this year’s meeting is more important than ever and will help the community build partnerships, understand the nuances of Duchenne, open communication channels, and lay the groundwork for future collaborations. PPMD's Annual Connect Conference shapes our understanding of the Duchenne landscape and brings us closer to the day we end Duchenne.

But to make our Annual Connect Conference successful... we need YOU!


  • When: Sunday, June 26 - Wednesday, June 29, 2016 
    (Pre-Conference begins on Saturday, June 25)
  • Where: Orlando, FL at the Renaissance Orlando at Sea World
    • Room Reservation Deadline: June 5
  • Early Registration Deadline: April 15
  • General Registration Deadline: May 15
  • Late/Final Registration Deadline: June 17

Snapshot of Conference Topics/Schedule

We hope you will join us in Orlando, FL where you will hear current and critical information on:

  • Managing care at every age of Duchenne — what you need to know now and in the future
  • Understanding Duchenne mutations and disease course
  • Duchenne clinical trials, both ongoing and upcoming — advancements, timelines, and access
  • Ways to measure the effects of potential therapies
  • Duchenne research in the preclinicalstage — where it is heading, what are next steps
  • Advocacy work in the Duchenne space — how this impacts research and treatments
  • Encouraging independence and life lessons

.1K Run to End Duchenne™ 

 .1K Run to End Duchenne

This year PPMD will host the inaugural Connect Conference .1k to End Duchenne™. Join us for this fun and zany race as parents, families, kids of all ages, scientist and researchers, industry sponsors, and ANYONE and EVERYONE take to the streets of Orlando and together tackle .1K (about the length of a football field!). Your registration for the .1K includes a race shirt, bib, swag bag, and all the fun of racing. You won’t want to miss this exciting event. It's a wonderful way to start the day raising awareness and have a great time doing it!

Kids Track

Kids Track

One of our most exciting and fast-growing programs at the Connect Conference is our Kids Track! During these sessions there will be entertainment, special group games, crafts and activities (broken into 3 age groups; minimum age is 5 or kindergarten), and loads of interactive fun.

Newly Diagnosed Program

2015 Connect Conference

This year, PPMD will again be offering an amazing support program for newly diagnosed Duchenne families to attend the Connect Conference. Through generous donations and sponsorships, PPMD will waive registration fees for families who have been diagnosed after January 2015.**

If your child has been diagnosed with Duchenne/Becker after January 2015 and you have never attended a PPMD Connect Conference and would like to attend the conference to gain a better understanding of Duchenne care and research, and to meet other families living with this diagnosis, please click here to apply for this scholarship.

(**PPMD can offer conference scholarships to approximately 30 families on a first come, first serve basis. This scholarship covers conference fees only and does not cover travel or hotel accommodations. Kids Track and Connect Conference .1K  are not included in this sponsorship.)

Register Today

PPMD's Connect Conference
 prides itself on bringing together the most important thought leaders in the Duchenne space. But just as importantly, we hope you will find this conference as a chance to really connect with this passionate and supportive community – a community few of us chose to be a part of, but none of us can live without.

We can't wait to see you and your family in Orlando, FL!


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