PPMD’s Connect Series: Bringing Together You & the Experts

For 21 years, PPMD has been connecting the Duchenne community with experts in the field focused on research, advocacy, and care. Our largest gathering is, of course, PPMD’s Annual Connect Conference coming up June 18-21 in Washington, D.C. giving families the opportunity to interact with thought leaders in the Duchenne space.

Roundtable Series

We are also happy to present PPMD’s Roundtable series hosted by our FACES coordinators. Topics include research updates and the latest care concerns…in your own backyard. Upcoming Roundtables include:

  • FACES of Washington: Seattle Children’s Roundtable & Family Event - Saturday, May 30th
    Please join PPMD’s Washington FACES group (Families Advocating Connecting Educating and Supporting) in collaboration with Seattle Children’s Rehabilitation Medicine as we host a Duchenne roundtable and family event, explore topics related to transitions, research, care, and education. Listen to a panel of Duchenne experts help navigate through designated topics with audience participation in discussion. Youth will interact with video game professionals about the ins and outs of the business and have the opportunity to play in our wheel-chair accessible mobile gaming van. We look forward to seeing you at Seattle Children’s for this unique event! Click here for more info.

Train the Trainers

Over the years, PPMD has been approached by patients and parents across the country regarding the lifelong therapy needs of people living with Duchenne. While all therapists are well meaning, some care for perhaps only a one or two Duchenne patients in their entire career. So, if this is the case, rather than provide education and training for only patients and parents, wouldn’t it be better to “train the trainers?” To that end, PPMD will be providing two, 2-day PT workshops this October in northern Florida and northern NY.

Each workshop will consist of two days:

  • Day 1 will provide education, training, and hands-on experience for physical therapists. CEUs will be provided.
  • Day 2 will provide education, training, and hands-on experience for patients and parents, as well as therapists interested in participating in both days. 

By providing education and training for patients, parents, and therapists in the area, we will be leaving behind experts with knowledge and experience that can be shared with families and patients.

Information from each of these events will be shared with the community afterwards. So even if you don’t live in an area we are visiting or if resources make it difficult for you to travel, PPMD promises to share all important updates with you.

Knowledge is power and makes us stronger as a community. That’s why PPMD continues to bring you these opportunities to learn more about Duchenne. The stronger we are as individuals, the stronger we are as a community. Together we will end Duchenne.

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