Kennedy Krieger Institute in Baltimore, Maryland was named a Certified Duchenne Care Center by Parent Project Muscular Dystrophy (PPMD), the leading advocacy organization working to end Duchenne muscular dystrophy (Duchenne). Kennedy Krieger Institute is the fifth center to be certified by PPMD, recognizing the Institute’s dedication to improving care for people living with Duchenne.
Duchenne muscular dystrophy is the most common fatal genetic disorder diagnosed in childhood, affecting approximately one in every 3,500-5,000 live male births.
Earlier this year, PPMD launched the Certified Duchenne Care Center Program as part of its robust Transforming Duchenne Care Initiative. PPMD will continue to award qualified centers the title of Certified Duchenne Care Center over the next several months in an effort to ensure centers maintain the highest standards in clinical and sub-specialty services, rapidly apply new evidence-based knowledge, minimize heterogeneity in clinical research outcomes and comply with standards in clinical care that were established by the CDC Care Considerations. As part of its ongoing mission to end Duchenne, PPMD promises to insist that all people with Duchenne receive comprehensive care.
Kennedy Krieger offers a comprehensive, interdisciplinary, individualized approach to all stages of care. Dr. Kathryn Wagner is the Director of the Center for Genetic Muscle Disorders at the Kennedy Krieger Institute and an Associate professor of Neurology and Neuroscience at the Johns Hopkins School of Medicine. For years, Dr. Wagner has played an integral role in helping PPMD improve care in Duchenne. Dr. Wagner cares for patients throughout their lifespan, but has especially been acknowledged by the Duchenne community for recognizing and addressing the unique needs of young adults living with Duchenne.
Kathi Kinnett, MSN, CNP, PPMD’s Vice President of Clinical Care and co-director of TDCI remarked:
“Dr. Wagner has long been a leader in Duchenne care. Her investment in patients and their families is apparent and appreciated by the Duchenne patient and professional communities. Her dedication to both care and research has long been recognized. PPMD has worked closely with Kennedy Krieger since the inception of the Center for Genetic Muscle Disorders five years ago and we are excited to award the title of Certified Duchenne Care Center to Kennedy Krieger.”
Dr. Wagner responded to the news that Kennedy Krieger was receiving certification, saying:
“PPMD has had a profoundly positive impact on the lives of those with Duchenne muscular dystrophy. This has included funding of research, education of parents, lobbying for legislative changes and establishing clinical care guidelines. All of us at Kennedy Krieger are proud to be a part of this new initiative to recognize clinical centers of excellence so that families know that they are receiving the best available care.”
To learn more about PPMD’s Certified Duchenne Care Center Program, visit PPMD’s website.