PPMD Congressional Champions Voice the Need for Action on the MD-CARE Act

On May 20th, the House Energy and Commerce Subcommittee on Health held a hearing entitled, 21st Century Cures: The President’s Council of Advisors on Science and Technology (PCAST) Report on Drug Innovation.

The hearing was led by Chairman Joe Pitts (R-PA) and is part of the new 21st Century Cures initiative that seeks to accelerate the discovery, development and delivery of promising new treatments to patients.

During the hearing, PPMD Champions and lead sponsors of the MD-CARE Act, Representatives Engel and Burgess, mentioned the importance of the MD-CARE Act, the impact it has had on potential therapies and the care of patients and stressed the need to utilize the expedited programs within the FDA, programs like accelerated approval and the “breakthrough therapy” designation. You can watch the full hearing online (Rep. Engel’s comments begin at 1:56:40 and Rep. Burgesses' begin at 2:06:11).


Please help us thank the Congressmen for supporting the MD-CARE Act & fighting to end Duchenne!

Is your member supporting the MD-CARE Act?

This is a pivotal moment in Duchenne's history and in this time of austerity measures and other cutbacks by Congress we MUST keep Duchenne on the front lines of agency priorities. To date, we stand at 98 House members and 26 Senators because of your efforts. As a goal for for May, let's secure 100 House members and 30 Senators! Tell Congress to support this effort TODAY! 

Take action now and find out if your member is on board yet.

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