Hello. I am new to all of this, although my son has been diagnosed with DMD since 2004. I want to be more involved with helping my son with his everyday needs. I want to be part of any studies possib…

Hello. I am new to all of this, although my son has been diagnosed with DMD since 2004. I want to be more involved with helping my son with his everyday needs. I want to be part of any studies possible, but I don't know how. Anyone with any ideas I would appreciate it. Thank you. Veronica Romero

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Comment by Keith Van Houten on March 6, 2010 at 11:40am
First step is to make sure your son is registered at www.duchenneconnect.org. That registry is used to connect patients with research studies - among other things.

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