My Voice: Jack Knight, 12 years old

We are always grateful to anyone who hosts an event, runs a race, or even sells lemonade to raise money and awareness for the fight to end Duchenne. But when a family consistently hosts a community event, that grows year after year, well...we are overwhelmed! The Knight family from Colorado will celebrate the 10th Annual Jumping Jack Golf Tournament, Wine Tasting, Dinner &.... The star of this great family event, year after year, is Jack Knight, the warmhearted, hilarious 12-year-old that the tournament honors. Do yourself a favor, and meet Jack Knight!

Meet Jack

So Jack, I know you and your family are busy getting ready for this year's Jumping Jack, but thanks for taking a few minutes to talk to us! How old are you and what grade are you in? Tell us where you're from.

I am 12 years old and I am about to finish 6th grade, and move onto middle school, in Westminster, CO.

What are some of your favorite things to do outside of school? What’s your favorite subject in school? What do you want to be when you grow up?

When I am hanging out home, I like playing Wii and with Legos. I also enjoy all Marvel Comic movies, but my favorite is Iron Man. I like to get out whenever possible to see nature, especially sea life - which we don’t have much of here in Colorado! My favorite is Killer Whales!  I started skiing last winter with Adaptive Adventures and love it. I break some rules and take my bi-ski through the power, trees, terrain park and I especially like the half pipe! I am looking forward to adaptive rafting and rock climbing this summer.

My favorite subject in school is Math, but who knows what I want to be when I grow up...!

You don't have to decide today! What does it mean to have Duchenne? What do you tell people who ask you about Duchenne?

I don’t really like to talk about Duchenne, I like to be as “normal” as possible.  I leave that part to my parents!

I don't doubt that your parents do a great job explaining. Do you have other friends with Duchenne? What’s special about those friendships?

I have lots of friends with Duchenne, some live here by me and some I only get to see when traveling. For example, I get to see my friend Sam at the marathons, conferences, and when they come to visit us. I have two local friends, which are brothers, that love Legos more than I do, if it’s possible! 

I don’t really feel like these friendships are different then my other ones. But, sometimes when I am with these friends, I don’t feel alone. I do like to be a good example for the younger guys with Duchenne. 

That's great. Tell us what Jumping Jack is. What’s your favorite part of the event? How do you help out or participate? What makes it a special day?

The Jumping Jack is a charity golf tournament, but it also has lots of other stuff like dinner (which is my favorite), wine tasting (which is my mom’s favorite), an auction, the “wheel of fortune”, etc.   My favorite part of the event is having all our friends together for a big celebration.  “Shaking hands & kissing babies” is my main job at the tournament. 

That's quite a talent...maybe you'll be a politician one day! When you see your whole family & friends putting together an event, year after year in honor of you, how does that make you feel? What would you like to say to them?

I feel grateful! Thank you for making me feel so special and loved! Also, thank you for all the great work.

Finally, if you could have dinner with any three people, real or pretend, living or deceased, who would you choose and why?

  1. Ironman/Tony Stark, because he’s my favorite super hero.
  2. Sam Killian, because we don’t get to hang out often enough – see ya’ at Disney, Buddy!
  3. All my “French brothers & sisters”, because they are all back in France now. ( French brothers & sisters are our exchange students: Audrey, Charles, Camille, Celia & Louis)

Thank you for telling us about yourself and your great family Jack! And readers, don’t forget to like Jack's Facebook page:!

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