Give him a fighting chance - that's all we ask!!Felix is a twin, almost 3 years old. His brother stands 4inches taller. They are, by their own admission, best friends. Their 2 older brothers adore their two tiny tigers! As parents our lives shook and our hearts cracked when 8 months ago Felix was diagnosed with DMD. Each day there is a constant heartache that this horrendous disease will change all our lives forever. It is unbearable to think about. That he can't play football with his brothers, that he can't walk to the playground with them, that he wont be there at their weddings? I'm dreading the day we have to tell his older brothers about his diagnosis. And Felix himself, well... We are positive people and light shone through our dark thoughts. The light was exon skipping. Potentially one of the first life changing treatments to challenge and overcome this disease.
All these boys need a chance, they need this medicine now! They need a chance to take a risk and to progress treatments such as exon skipping. Time is their worst enemy! What is being developed is life changing but cannot wait. Their future is in your hands, make it a good one!! Nothing great has ever been achieved by not pushing forward!!