In February 2013, a bipartisan group of Senators and Representatives introduced the MD-CARE Act Amendments of 2013 (S. 315 and H.R. 594). This legislation seeks to update the landmark MD-CARE Act law that has done so much over the past 12 years to extend and improve life for those impacted by Duchenne and other forms of muscular dystrophy and to spur breakthroughs in research that are getting us closer to effective therapies and treatments.

Hundreds of PPMD advocates have already met with, phoned, or emailed your Members of Congress to ask them to cosponsor this legislation. However, if your members are not on this list, they have not yet taken action to cosponsor the bill.


It’s time to reach back out and remind them how important the MD-CARE Act has been to our families and to urge them to help us continue to make progress to our quest to end Duchenne by enacting the MD-CARE Act Amendments of 2013. Each new Representative that signs on brings us closer to continuing the important research for muscular dystrophy.


Take two minutes today to contact your Senators and House Member, and urge five family members or friends to do the same thing (just click the "Share" button below this post!)

We believe that as a result of your action, the MD-CARE Act Amendments will be enacted into law, and our government will continue its strong support of all those impacted by Duchenne.


Views: 451


You need to be a member of PPMD Community to add comments!

Join PPMD Community

Need help using this community site? Visit Ning's Help Page.



© 2021   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service