I am Anessa Fehsenfeld, PPMD’s Board Chairman. More importantly, though, my husband Scott and I are the parents of three beautiful kids Bekah (18), Tyler (15), and Hudson (11). Tyler has Duchenne. Almost immediately after his diagnosis, I found PPMD, and they’ve been a godsend. As the mother of a teen with Duchenne, I can’t begin to tell you how much I’ve appreciated PPMD’s ability to look at the whole disease and help our family navigate his diagnosis at every age, every turn.

Donate now to have your gift matched.

That’s why today, as a parent and board member, I’m asking for your support to help us make a deep investment. This holiday season we are raising money to advance combination therapies in Duchenne. And thanks to our partners, Cure Dale’s Duchenne and Rally for Ryan, any gift made online between now and the end of the month will be matched dollar for dollar.

When PPMD decided on this project, funding combination therapies research, I was struck by how forward-thinking the idea was. And how the word “combination” really speaks to what attracts me most to PPMD.

For 20 years, PPMD’s Founding President and CEO, Pat Furlong, and the incredible staff she has assembled have looked at the entire disease of Duchenne. For research, they’ve always focused on the entire community. PPMD knows, as we all do, that one treatment or one drug won’t be enough. Only a combination approach will help all of our children with Duchenne.

Now we’re asking for your help in reaching an ambitious goal of $400,000. In less than two weeks we have already raised $128,000. But now, thanks to the generosity of these two foundations, we can get to our goal that much quicker! So donate today.

For PPMD, working in combination goes beyond research, as well. Collaboration is a fundamental idea that runs through everything we do. It’s why we combine advocacy and policy work with optimizing care for people with Duchenne and connecting leading experts in the field with our families.

Right now, you have the opportunity to show your strength. Make a donation today and have your gift matched by Cure Dale’s Duchenne and Rally for Ryan.

Like you, the families behind these foundations have children with Duchenne. Like you, they want to do everything they can to stop the progression of this disease. They understand that a combined therapeutic approach will bring us closer to ending Duchenne. You can add your support to theirs and show your belief in the power of combining efforts.

I couldn’t be prouder to serve on PPMD’s Board and I couldn’t be prouder to serve this community a community that has been a source of strength for me and my family. Thank you for supporting us, and for supporting PPMD in their efforts to push forward combined therapies for everyone with Duchenne.

Happy holidays from my family to yours!



P.S. PPMD is hosting a webinar on Wednesday, December 17th at 1PM to discuss the therapies that we’re supporting through this year-end campaign. Save the date and stay tuned—we hope you’ll join us!

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