Tomorrow is Ben's first neuromuscular clinic appointment. I made a list of questions to ask this doctor. Funny thing is, I don't expect any answers. We have been told that our local hospital is not the place to seek care. We couldn't get an appointment for the better place until April and won't go to Cincinnati until March. I feel like PPMD has been my "clinic". I have learned so much here. I have learned that I need to be the vocal minority to ensure Ben gets what he needs. I have learned that I am stronger than I think, even though I feel I may shatter.
A good friend told me that all the stuff I've gone through was just small potatoes, that it was all just preparing me for this. The Real Deal. He was right.
I can do this. WE will do this.