I haven't done much on this site but read all of the very interesting things going on and enjoying everyone's pictures. Of course posting lots of pics of my handsome son. But now I feel like I need to post this to see what everyone else thoughts are or have information about severe heart arrhythmias in a 14 yr old boy with DMD. Brandon lives in El Paso with his Dad and his Step-Mom Catie, she's a member too (Momma Too), we stay in very close contact with each other because of Brandon and the distance, I am in Alabama. Brandon went to the Doc 2 weeks ago today for his heart exam, he was just there in September. The Doctor told Catie he has a severe heart arrhythmia, she being an ER nurse said that when she heard his heart beat, it didn't sound right, kinda had a "click" to it and a sideways beat to it as well. He said it was much weaker since the last visit. Even to the point that he asked her "What do you want to do?" and also said "We will do what we can for as long as we can." I do not understand any type of medicine or the human body, although it is very interesting to me, I love it. Catie can explain things to me so that I can understand it better. She and I both are just floored about his lungs being fine (or no changes) but his heart being as weak as it is. Brandon has been put on a "self limited" status, not alot of physical activity. Which hasn't been a problem since he become wheelchair bound. Catie and I talked for 1 1/2 hours last night, neither of us can figure out why it's his heart first and not his lungs, most studies and things we read talk about the lungs having problems before the heart. We know that not every child will follow the same steps with this horrible disease, but the heart first, at 14? It's not supposed to happen like this, right? They have put him on Coreg. I was just curious if anyone has heard of the heart being affected this, badly this early. Or anyone's thoughts on it all. Any information would help Catie and Myself alot right about now.
Thanks in advance.