Okay I am writing to rant...I am SO very fustrated...
Went to the school district today to get Trey enrolled in Early Start Kindergarten...we are in the process of the IEP now, and this lady asked how old Trey was...Trey just turned 5 last wednesday, and we just got a 90% sure diagnosis of Duchenne's last Wednesday...so this is all new.
She asked me when his birthday was (September) then went off on me about the fact that Trey was 5 already (for 6 whole days) and not in school (just moved from Colorado where you can't start kindergarten unless birthday falls before July 1st anyways)...She took no time to ask about our situation, watch Trey move, even talk to Trey or ask why he wasn't in school yet (although we were planning on starting him in January), she just went off on me, making me feel like I was being a 'lazy mom'...
SO THEN in front of tons of people I had to tell her...look he has MD, we do have an IEP, and on and on and on. And then I had to 'describe' our situation, the disease, etc, right in front of Trey. They had no clue what this is, and little apathy...I had a breakdown right in the school in front of my son (who I don't think realized it, just said "Mommy Sad?"). I don't want him to be treated differently then anyone else, but this is ridiculous!
I know I need to be treaded on lightly right now being pregnant and just learning of this, but I SO didn't need this today! Beginning to think that this is something we will be dealing with forever from here on out...uggh!
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