Thanks to everyone for their words of encouragement at this year's conference. It's funny how many people tell me I give them strength, when it is actually all of YOU that give me the strength to present with honesty, compassion, and humor. We all have one life to live. In one of my favorite movies: The Shawshank Redemption, the character of Red utters an important line:

Get busy living, or get busy dying.

I choose living. We must all see the glass as half-full.

Breathe, take one day at a time, and enjoy everything you can.


See you all again very soon!!

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Comment by Tamara "Michael's Mulisha" on October 26, 2009 at 12:50am
Hello, Im Tamara. My son Michael has BMD. He has a deletion of 45-49. We did a biopsy and he showed he was producing atleast 20% dystrophin. Im curious to know how you are doing at your age. I guess from a mom's view, I want to know how my son is going to be in the future. I know everyone is different but a little insight to your life would help. If you wouldnt mind sharing, I am all ears. I have never been to a conference. I was 7 months pregnant this year so unable to travel. Michael was not diagnosed until July of 08. (Worst day in my life).


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