Calling All Adults with Duchenne/Becker – Join the 2018 PPMD Adult Advisory Committee!

Ever wished you could change the world – or at least your piece of it? Been looking for a way to engage a bit more? Have personal experience that you’d like to see be better reflected in national policy and program efforts?

PPMD is seeking adult members of our Duchenne/Becker community to serve on the PPMD Adult Advisory Committee (PAAC). Please consider lending your time, talent, and vision to paving our pathway forward.

Application deadline: Friday, November 17th


Role of the PPMD Adult Advisory Committee (PAAC): 

The PPMD Adult Advisory Committee (PAAC) serves to ensure that the voices of adults living with Duchenne & Becker muscular dystrophy are reflected in PPMD’s legislative, policy, and program activities. PAAC members serve in a formal advisory capacity for their respective term and maintain leadership over a PAAC initiative throughout that term; PAAC initiatives are determined by the PAAC membership and PPMD Executive Team.


PAAC Member Requirements:

To be eligible to serve on the PAAC, members must be age 18 or older at the time of application and diagnosed with either Duchenne or Becker muscular dystrophy. All PAAC members are required to participate in bi-monthly Committee conference calls or webinars. In-person meetings are occasionally held in conjunction with PPMD’s Annual Advocacy Conference in Washington, DC and PPMD’s Annual Connect Conference each June; meeting attendance by PAAC members is strongly encouraged but not required for membership.


To Apply for PAAC Membership Consideration:

Please submit a brief statement of interest, along with a brief biography, and resume to Annie Kennedy, PPMD SVP – Legislation & Public Policy. Your Statement of Interest should include information about what contributions you feel you could make to the PAAC and what (if any) leadership and committee experience you have had in the past. Please note that inexperience will not disqualify your application.

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