2010-06-19 Motivation and Perseverance with Duchenne

I wrote an article on my personal blog regarding my motivating factors. Out of my top five motivators, family rang in at number 2 and happiness came in at number 1.

Living with Duchenne Muscular Dystrophy can try anyone's will, patience, and
resolve. Over the past 8 years we like many other families have had our
share of difficulties with doctors, agencies, and the condition
progression itself.

If Lucas wasn't such a special kid (BTW..everyone's kid is special) it would be easy to throw in the towel.
When Lucas was diagnosed, I promised myself that I would have his back
and be there for him no matter what. I believe to this point I have
stayed true to my promise.

My motivation to continue is Lucas. Every time Lucas tells an joke that
can sometimes be a bit on the blue side, every time Lucas asks me a
question about anything from science through human behavior and
everything in between, every time Lucas tells me about what makes him
angry or sad and we find a way to work through it.

I just now had a conversation with Lucas about him not wanting to do his
stretches. I had to play bad cop and remind him how fortunate he is the
he can walk while some others can no longer do so. He is now doing some
heel cord stretches against the door and no longer whining about it.

Lucas just became motivated not because of me being bad cop, but because he
was reminded how fortunate he really is at that moment in time.

How do your kids motivate you?


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Comment by JUAN PEDRO ARBULU on August 13, 2010 at 3:41pm
great!! go on Lucas!!!!

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