I get asked for this information quite often. I'm still getting used to this new site. I thought this might be a way for people to get at the information easily.

You can access the Medic Alert Website at
www.medicalert.org (US)
www.medicalert.ca (Canada)

They provide a bracelet that your son should wear at all times. My son wears his 24 7. I worked closely with my pediatrician and one of the medic alert nurses to determine what should be on the bracelet. My son's information is as follows:

Call 1-800-625-3780
Muscular Dystrophy.
Use Anesthetic Precaution, No Anectine.
Member # 99999999

A card is also provided with the full information on file: This information is as follows:
Medical Information: Use Anesthetic Precaution, Steriod Dependent, Duchenne Muscular Dystrophy
Takes a cortisteriod Deflazacort, Lisinipril, Correg (Include all perscription medications)
Allergies: Contraindication to Halothane, Anectine
Person to notify listed is our Pediatrician and Mom and dad with phone numbers listed.

In case anyone was wondering Anectine is an anesthic that EMT's carry that is similiar to Halothane. Halothane is an anesthetic that could invoke Malignant Hypothermia in Duchenne patients

Views: 403


You need to be a member of PPMD Community to add comments!

Join PPMD Community

Comment by Evan's Mom on September 8, 2008 at 9:03pm
In Canada, check with your school to see if they are registered for the program "No Child Without". Medic Alert bracelets are provided free of charge to students at participating schools.
Comment by Christine Piacentino on August 21, 2008 at 6:29am
You probably already checked out the web-site but the have bracelets that kids like.
Comment by Rodney Foster - Sam's Dad on August 18, 2008 at 9:19pm
Thanks for this ... I am getting a bracelet for Sam directly ... we have a card but not a bracelet. Do they have cool styles so kids can enjoy wearing them for the look also?
Comment by Rhiannon Traigle on August 13, 2008 at 3:42pm
AWESOME! Thanks!!!!
Comment by Joanne Keeley on August 13, 2008 at 9:40am
Thanks Christine, I have been meaning to do this for a while now-
Nearly had a mistake made in a hospital when Wyatt was having a minor
procedure (nothing to do with dmd). Spoke to everyone in the group of
anesthesiologists and STILL... Everyone should remember that even at the
last moment before a surgery and even with the bracelet on, say it ONE more
time. Take care, Joanne Keeley

Need help using this community site? Visit Ning's Help Page.



© 2022   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service