I wrote this poem today, I wanted to share it with all of you.

My Boy, My Son - by Sharyn Thompson.

You were born on a Saturday, on a day so fine
I saw you, I held you, I loved you, you were mine
You had 10 tiny fingers and 10 tiny toes
Two perfect dimples and a sweet upturned nose.

Your daddy, he was besotted, he’d never known such joy
He’d waited his whole life for you, his perfect little boy
He’d show you the world, how to surf, how to ski
Someone he could teach to become a better man than he.

The months went by and you grew so fast
Little did we know of the shadow that was cast
You rolled, you sat, though you never did crawl
When you started to walk, you would always fall

We knew no different, you were our first you see
When you continued to fall, we just thought “he’s clumsy”
It wasn’t until Number 2 came along
We realised that something was terribly wrong

Your sister grew fast and soon found her feet,
She ran rings around you outside on the street
Alarm bells rang, we thought physio was all
You would need to climb stairs, start running, stop the falls.

On Fathers Day, at age two, we took you to see
An elderly doctor, a regular kids’ GP
“He has muscle disease”, he said with a smile
I felt sick to the stomach, I could taste my own bile.

First reactions were shock, hate and anger, despair
Life really sux, life just isn’t fair.
“A death sentence?” I asked, and I started to cry
I could not understand. Why my son? Tell me why?

So they’ve told me you’re sick, they’ve told me you’re dying
Since that moment I heard I haven’t stopped crying
All those hopes, all those dreams we had planned from the start
I thought they were gone. It was broken, my heart.

Daddy and I spent the next months in a haze,
Kept hoping we’d wake from this dream, from this daze
When you were around in the day, we’d smile and be brave
When you went to bed each night, our demeanour would cave.

But we couldn’t keep going this way, this we knew
We had to make our life full of great times for you
No more wallowing in sadness, no more anger or hate
We won’t watch you die, we won’t sit around and wait.

So we’re fighting for you, for your future, your life
So you’ll grow up, be strong, fall in love, find a wife
Have kids, travel widely, be happy, know true joy
And look back fondly on your time as a boy

We’ll never stop fighting, one day we will cure
This disease and we’ll save you, of this I am sure.
I’ll love you always, for infinity plus one
You’re my perfect little boy and I love you, my son.

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Comment by Danielle on December 30, 2008 at 8:24am
I can't stop crying! That's so beautiful!
Comment by Holly Bailey on September 1, 2008 at 1:34am
thank you for sharing - so true of how we all feel.
Comment by Lisa Tepper on August 23, 2008 at 12:44am
Your poem really touched my heart. Thank you.
Comment by Joyce Bergeron on August 10, 2008 at 12:31am
Beautiful. You've captured the essence of our heart. God is always near a broken heart.
Thanks for sharing
Comment by Jill Keenan on August 6, 2008 at 12:09pm
What a beautiful poem--I think you have captured how we all feel!!
Comment by Rhiannon Traigle on August 6, 2008 at 12:40am
That is wonderful...it made me cry. Thanks for sharing it.
Comment by Kari on August 5, 2008 at 10:25am
Wow Sharyn, You have quite a talent. The poem is beautiful.
Comment by Beverly DeVergillo on August 5, 2008 at 8:57am
Wow, that is a great poem. Thanks for sharing.

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