PPMD's Blog – September 2013 Archive (4)

Impact of Drisapersen Phase 3 Data on Prosensa Programs

Prosensa has provided the following update regarding the impact of the drisapersen phase 3 data on its programs: 

While we are disappointed and surprised with the unexpected outcome of the drisapersen phase 3 study, we remain very committed to drisapersen, the Duchenne program at…

Continue

Added by PPMD on September 24, 2013 at 11:30am — No Comments

PPMD Leadership on Patient-Focused Drug Development Nets Invitation to Present at Two Influential Meetings

Parent Project Muscular Dystrophy (PPMD) has been invited to present at two upcoming stakeholder meetings.



The invitations, to PPMD Founding President & CEO Pat Furlong, were extended by leaders in the U.S. government in recognition of PPMD's groundbreaking work to advance the patient and parent perspective in the drug development and review…

Continue

Added by PPMD on September 10, 2013 at 9:44am — No Comments

Spiritual Journey to the Arches

Guest post by Jill Anne Castle, mom to Oliver, 11, and Anthony, 13 and living with Duchenne. Jill is an Educational Consultant and PPMD FACES of Arizona Volunteer Coordinator.



Spiritual Journey to the Arches…

Continue

Added by PPMD on September 9, 2013 at 8:30am — 2 Comments

How I Wish

Guest post by Ivy Scherbarth. Ivy is a Colorado/Wyoming FACES Coordinator for PPMD and mom to Hazel, age 8, and Rain, age 6. Rain has Duchenne muscular dystrophy. Follow Ivy at her blog, Living …

Continue

Added by PPMD on September 6, 2013 at 12:46am — 2 Comments

Monthly Archives

2018

2017

2016

2015

2014

2013

2012

2011

2010

Need help using this community site? Visit Ning's Help Page.

Members

Events

© 2019   Created by PPMD.   Powered by

Badges  |  Report an Issue  |  Privacy Policy  |  Terms of Service