PPMD's Blog – June 2013 Archive (3)

New "Care for Duchenne" Section

With so many exciting happenings at PPMD and in our community, it is too easy to rush from one “fire” to the next and forget to celebrate our successes. Take a moment with us, and check out one success: our new Care for Duchenne pages



We created the new…

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Added by PPMD on June 13, 2013 at 2:00pm — 1 Comment

Benefit/Risk Survey Results to Be Submitted to FDA with a Goal of Accelerating Review of Duchenne Therapies

Results to Be Submitted to FDA with a Goal of Accelerating Review of Duchenne Therapies

 

PPMD has conducted a rigorous survey of more than 100 parents whose children have Duchenne, gathering invaluable perspectives as to treatment priorities and risk threshold based on realistic but hypothetical treatments - information that PPMD is encouraging regulators to use to accelerate review time and, ultimately, to speed access to…

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Added by PPMD on June 11, 2013 at 2:00pm — No Comments

Expertise

Guest post by Ivy Scherbarth. Ivy is a Colorado/Wyoming FACES Coordinator for PPMD. Follow Ivy at her blog, Living

Duchenne.

Expertise…

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Added by PPMD on June 7, 2013 at 8:30am — No Comments

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