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PPMD's Blog – February 2015 Archive (5)

Parent Project Muscular Dystrophy & Foundation to Eradicate Duchenne Award $1 Million Grant to ReveraGen BioPharma

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Added by PPMD on February 25, 2015 at 11:00am — No Comments

BioCentury Cover Story: What industry, FDA must do to realize the potential of patient engagement

"Making patients true partners thus would help create better medicines and reduce skepticism about regulators and the animus that has destroyed public trust of the pharmaceutical industry."

A great cover story from BioCentury yesterday talks about changes both industry sponsors and the FDA need to make in order to improve the drug development process.…

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Added by PPMD on February 24, 2015 at 10:30am — No Comments

PPMD Leads Duchenne Advocates to Capitol Hill to Accelerate Therapies and Quality Care

PPMD's Annual Advocacy Conference Focused on Implementing MD-CARE Act Amendments & Strengthening Patient Voice at FDA

Just months after helping achieve enactment of amendments to the landmark …

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Added by PPMD on February 23, 2015 at 10:30am — 2 Comments

PPMD Awards University of Missouri $50,000 Exploratory Grant to Explore SERCA2A in Duchenne Dog Study

PPMD has awarded a $50,000 Exploratory Grant to University of Missouri to test SERCA2A gene therapy as a potential treatment for dogs with Duchenne. Dr. Dongsheng Duan, a longtime researcher in Duchenne and a member of PPMD’s Scientific Advisory Committee, leads the project.…

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Added by PPMD on February 16, 2015 at 11:00am — No Comments

PPMD Names University of Iowa Children’s Hospital a Certified Duchenne Care Center

Today Parent Project Muscular Dystrophy (PPMD) named The University of Iowa Children’s Hospital (UI Children’s Hospital) our seventh Certified Duchenne Care Center, recognizing the Hospital’s dedication to improving care for people living with Duchenne.

In 2014, PPMD launched the…

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Added by PPMD on February 6, 2015 at 1:30pm — No Comments