Guest post by Joanna Johnson. Joanna is mom to Elliott and Henry, both living with Duchenne muscular dystrophy.
As you may know, PPMD is involved in a study funded by the NINDS to learn about our community’s thoughts about clinical trials. I am on the study leadership team. Being a part of this study has been…
Added by PPMD on February 13, 2014 at 10:17pm — No Comments
Guest post by Ivy Scherbarth. Ivy is a Colorado/Wyoming FACES Coordinator for PPMD and mom to Hazel, age 8, and Rain, age 6. Rain has Duchenne muscular dystrophy. Follow Ivy at her blog, Living …
Added by PPMD on February 7, 2014 at 9:00am — 2 Comments
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