Terrific news on a donation for the event that we are proposing to Camden Park! Riley's World and Parent Project Muscular Dystrophy A Celebration Of Life! I just received an email from Sleepy Hollow Chalets in response to my letter explaining our proposal and what we are doing: here is their letter:



Hi Dreama,



Thanks for contacting us. We are definitely interested in supporting this cause. We will most likely donate a couples only, two-night romantic getaway. We can send a… Continue

So, I have been thinking about the type of event that I would be interested in hosting. I kept racking my brain for months, I want an event that also promotes Family Time...Quality family time.



Then the other day, an idea hit me. We have a local amusement park that doesn't get as many daily visitors as when I was a child. So, I am getting all my event details worked out, before pitching the idea to the park management. I have started sending out emails to other local venues asking… Continue

Riley had is appt with the eye doctor today and he is doing great. he passed with flying colors. I have my appt with the doctor tomorrow to find out if I am a carrier. Duchenne is the most difficult thing to understand, I can't imagine that I would be a carrier and pass it to my daughter to pass to her children, yet I didn't pass it to my own son. Just mind-boggling.

October 17th, the second time in my life that I heard the most agonizing words...my grandson Riley has Duchenne. Riley's older brother Aydon was my first born grandchild and passed away at 6 weeks of age from heart defects. When Riley was born, I thought will God take him too. It was hard to let myself love him completely, I was scared, but Riley broke that wall of fear right down and took my heart in his hands.



Knowing that Riley has Duchenne's is very difficult for all of us. Riley… Continue