Getting ready for the normal high school milestones in our house is always a creative endeavor. At the beginning of April Jon came home from school and said that he wanted to attend Prom. He asked if he could attend the prom without renting a tux. Our goal is to have Jon experience all the normal things kids his age get to experience. I said, yes we should get a tux. The month of April flew by. On…Continue
The wind in my sails may be coming back.
Two things have occurred that provide me with some hope that Ataluren may still be viable.
One was the…Continue
Added by Christine Piacentino on May 7, 2010 at 9:10am — No Comments
There some days when I think that my life is just not normal. When I start thinking this way I really need to remind myself that normal is a relative term. How a person deals with life is really defined by personal circumstances of their past and present life experiences intertwined.…Continue
Added by Christine Piacentino on March 28, 2010 at 10:00pm — No Comments
Wind in My Sails…Continue
Added by Christine Piacentino on April 25, 2009 at 8:50am — No Comments
Added by Christine Piacentino on November 22, 2008 at 8:10am — No Comments
Added by Christine Piacentino on August 12, 2008 at 8:52pm — No Comments