Christine Piacentino's Blog – November 2008 Archive (2)

Being a Pioneer

The past two months have been difficult for me. We have started the PTC 124 extension trial. We have waited for baited breath for the last two years to start this trial.



My son, who is more than willing to try any therapy if he thinks it will help, balked at the plan. I came home from work late one night to find my son in a state of total melt down. Yes, at 15 we have melt downs. For the past two months it has been a struggle to gag down the vanilla flavored drug. Given his age and… Continue

Added by Christine Piacentino on November 22, 2008 at 8:58pm — 3 Comments

Newspaper Article about the Piacentino Family

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By Mike Costanza, correspondent

Penfield Post

Posted Nov 04, 2008 @ 07:05 PM



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Penfield, N.Y. — Christine Piacentino remembers Dec. 31, 1997. That was the day she and her husband, Michael, learned their 4-year-old son, Jonathan, had Duchenne muscular dystrophy.

The news hit the Penfield couple… Continue

Added by Christine Piacentino on November 22, 2008 at 8:10am — No Comments

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