What I know now after 10 years of Duchenne affecting my family.
Life with Duchenne is a roller coaster.
Hope is constant.
Duchenne does not define my son's life, my son define's his own life. Duchenne is just something we deal with.
It's really OK to question the Doctors and understand what they are doing and why they are doing it.
Sometimes I know more than the Doctor treating my son. I will need to provide Duchenne education to… Continue