Christine Piacentino's Blog – August 2008 Archive (2)

Medic Alert Bracelet Information

I get asked for this information quite often. I'm still getting used to this new site. I thought this might be a way for people to get at the information easily.

You can access the Medic Alert Website at (US) (Canada)

They provide a bracelet that your son should wear at all times. My son wears his 24 7. I worked closely with my pediatrician and one of the medic alert nurses to determine what should be on the bracelet. My son's… Continue

Added by Christine Piacentino on August 13, 2008 at 6:29am — 5 Comments

What I know now. What I didn't know then.

What I know now after 10 years of Duchenne affecting my family.

Life with Duchenne is a roller coaster.

Hope is constant.

Duchenne does not define my son's life, my son define's his own life. Duchenne is just something we deal with.

It's really OK to question the Doctors and understand what they are doing and why they are doing it.

Sometimes I know more than the Doctor treating my son. I will need to provide Duchenne education to… Continue

Added by Christine Piacentino on August 12, 2008 at 8:52pm — No Comments

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