Christine Piacentino's Blog – January 2012 Archive (1)

Advocacy is what we dare to imagine!

Having sons with Duchenne forces us into advocating for services, equipment and optimal health care.   In reality, whether we are getting services for our son at school, dealing with insurance companies and doctor’s in trying to get the best care, or meeting with staff and members of congress we are advocating.  In 2000 when Parent Project Muscular Dystrophy first organized their advocacy efforts in Washington DC, my family felt it was important to meet with our members of congress. By the…

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Added by Christine Piacentino on January 4, 2012 at 6:39pm — No Comments

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